Had CT in july 2012 showed a mass in Left corona radiata. Had MRI mass is 7.6mm x 5mm radiologist said M.S or Venous Cavernoma ( no void of blood flow no popcorn/berry like appearance) or Neoplasm (edges are spider like in appearance). Had Lumbar puncture not MS had follow up MRI two months later mass still the same. Saw a neurosurgeon my family doc sent me there thinking he would biopsy. He didn't even look @ my films (couldn't get them open) didn't read report. and informed me that he thought I had had it all my life. However I had a CT in 2004 that showed nothing there. Saw a nuerospecialist she refused to biopsy got mad when I let her know I was well informed and had done months of research on all possabilities and studied MRI examples of all possibilities threw her hands in the air and yell yes yelled I thought we had moved past this and then proceded to tell me that I was fat and out of shape and that was my whole problem. I recently saw a nuero oncologist one of only two in our state she told me she would order an MRSpectra and if it came back milignat she would have to do a craniotomy and that she could not do any other kind because of it's location. I have her on tape. I will tape every visit as I have been lie to by so many I am in desperate need of help and don't wish to wait and see. I want to catch it early and increase my survival rate . Can some one PLEASE HELP
P.S. I find out that the last one the nuero oncologist use to work in the same place as the one who guessed the nuerosurgeon. I guess I won't ever find out @ this rate.
How are you? What are the symptoms present and what other diagnostic tests were done? Were you able to have the procedures requested by your neuro oncologist? I'm sorry to hear what you've been through for the last months. At this point, waiting for the result for the evaluation or seeking another neurologist's opinion to ease any worry. Take care and regards.
I have been experiencing extreme anger boardering sometimes on rage. I am normally a very calm and easy going persson and not easily upset. I have gotten a new family doctor and at least he is being honest with me so far. I also have had head aches for months which have become more severe in the last three months. I have alot of trouble sleeping and am now on medication for the headaches at night they are suppose to help me sleep but I don't get tired till approx. 3am and toss and turn most of the night. I had my MR Spectra and the NAA was low, CHO was low, LL was normal???? but the mass had increased to 1cm. So I guess I will wait another six months to see if it has grown. However, I know it is not MS and my family doctor says if it didn,t show up on the ct in 2004 then it has not been there all my life.
P.S. Sorry I didn.t respond sooner I had alot of tests done and blood work and in the midst of all this my older brother died of stage 4 prostrate cancer. Also on the up side I am expecting my second grand baby soon. thank you for your response.
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