Chordoma Survival

Has anyone out there survived having Chordoma?
The doctors are pretty sure I have one on my sacrum, but no one wants to give me a prognosis.
The web says that the median life expectancy is 7-8 years, and I'm wondering if anyone reading this post has beaten that.

If so, we need to chat.

Thanks

[JimSmitts]

BigDaddyOG, I have not myself had chordoma, but I saw no one had responded yet. I see you're in Florida, so I'm not sure exactly what options you would have in your area, but from what I understand proton therapy is another avenue for treatment that might be worth considering too, as you try to narrow down your options and best course of action. Best of luck to you through this hard time.