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Cystosarcomas - Phyllodes Tumors

by VLZO, Apr 14, 2007 12:00AM
14 months ago, my Mom was diagnosed with this and had it surgically removed.   Had Radiation for 28 sessions.  About a month ago, doctor took xrays and CT scans and now its in both lungs.   Surgery not an option.  Treatable but not curable.  Has anyone ever encountered this situation.  Has a cough and takes meds to control cough and pain killers too.  Please shed some light or share story.  We thought we were out of the blue as Phyllodes tumors are not known to spread.  We were wrong.
Member Comments (2)

by CarrieLeeWarrior, Sep 09, 2007 12:33AM
To: VLZO
I was recently diagnosed with a malignant phyllodes tumor also, and am trying to find other women who have this type of cancer, since it is so rare.     Please contact me @ ***@****, I have a lot of information I would like to share.

Thank you,

Sincerely,
Carolyne Williams
Age 26

by CarrieLeeWarrior, Sep 09, 2007 12:34AM
To: VLZO
OctoberFire13 at A O L . com
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