Dementia following radiotherapy childhood ependymoma

[chalzrivahmom]

Our daughter was treated 22 years ago for an ependymoma.  She had surgical removal of most of the tumor, radiation treatment to the whole brain with a boost to the tumor site because a remnant had been left under the brain stem because it was considered inoperable.  She also received 7 rounds of chemotherapy including Cisplatin and Vincristine and something else I can't remember right now. She's done well until about a year ago when she began having very mild seizures.  We've seen a neuro-oncologist and epilepsy specialist, and think her care is superb.  Now she is beginning to be forgetful, and intermittently confused for brief episodes.  The neuro-oncologist believes this is a form of early dementia, started her on Aricept, and we will be seeing a behavioral neurologist in about 8 weeks.  Does our approach sound reasonable, or is there anything else I should do?  Can you give me any idea about what we're facing ahead of us?