Full of questions and worries

[heeler50]

I am sorry  if this is long but it is a bit involved. Three years ago I had a bone scan performed after complaining of pain in my side for some times to my GP and pulmonary specialist my 6th rib lit up in the scan and the pulmonary still didnt want to do anything because he said I had probably broke it with my bad cough and that was what was showing. A CT scan and the attempt to obtain a needle biopsy showed a mass on the 6th rib too had to obtain a sample. A surgeon removed the entire rib. The surgical site herniated and I had it repaired a year later and noticed gradually worsening pain in my side again. I figured scar tissue and didnt complain. Then a lymph node enlarged under my left arm, I went for my mammogram and they got very official and also performed a diagnostic mam with a ultrasound and said it was okay. That was months ago the lymph is larger and i have enlarged lymphs in my groin on both sides. In a completely different health issue I saw a neuro at Mayo clinic in MN and he ran tests for antibodies that would pick up antibodies to cancer cells before regular testing can normally find it. My ACh R  neurounal  ganglionic Ab S came back elevated> 0.10  with> 0.02 normal .  I guess it can mean several other things also, ALS, and Myasthenia Gravis but my home nuerologist said he had ruled out ALS in his mind a while back and my GP had tested me for MG. so the cancer word comes back into play. I apologize for mispelled words or possible inaccuracies, I do not have my tests in front of me they are on the computor I am typing on and I dont want to loose this page if I switch back and forth. I saw my GP again yesturday and asked him what do we do I  have this test and no answers from up north the neuro up there has requested a consult with a autoimun neuro and he is not in until next week. I am in more pain from my side, a burning pain directly below my rib, I can not lay down flat at night it ends up making me hurt incredibly , this is so oddly similar to a few years ago when I had the last tumor. My GP is ordering a bone scan and I am pretty freaked out. Anybody else ever had this test and found it to be accurate? Input and handholding would be appreciated. Thank you.

[heeler50]

I have tried the over the counter PM advils or tylenols they dont even phase me. The last two days my blood pressure has gone completely crazy. I have always run low, actually the last year way low as one of my Drs decided to take me off of the Prednisone and Methotrexate I had been on  for thirteen years for Lupus.  My adrenals are all messed up now and a recent saliva test revealed that my cortisol level goes up at night instead of down like it is supposed to do, probably good of you are a night watchmen or work third shift someplace, but I am or do neither. Felt odd the other morning and figured my pressure must be really low, just for the heck of it I grabbed my BP cuff and it was 170/88 I went upstairs to lay down and it went even higher to 195/99 I felt shakey and weak and my hands and face felt numb. I lay quiet for a hour or so and it went down to 124/76  closer to normal for me but it would go up if I moved around much so I just stayed quiet all day and most of today. Tomorrow I will call my GP and let them know what is going on. I have had TIAs in the  past and dont want a stroke. too. I am on a blood thinner.Plavix. Cant sleep again tonight painful lump on the tops of my ribs under my breast actually can tell the difference from one side left ribs to right ribs, noticable lump.

[Jerry_NJ]

You may get some help from a prescription sleeping aid.  I have used a generic form of a popular sleeping pill.  I think these medications are safe if not used every night for months at a time.  Hum, Alieve (sp?) is the "popular" pill I was trying to recall and did ; )

[heeler50]

it seems like everything takes so long, how is it that you hear of people that have everything fall into place and are receiving treatment so quickly yet I feel like I am slogging through wet cement, I cant sleep at night because my side seems to hurt worse as the sun goes down and laying flat makes the pain worse so I sleep in a recliner so I never really seem to get decent sleep. I am so tired some days I feel a hundred years old. sorry I sound like a real poor me its the not sleeping thats the worse. Thank you for your kindness.

[Jerry_NJ]

My sympathy, hand-holding is all I can offer.  Seems you have all the "right" doctors to find out what is wrong and what can be done.

Sending my best wishes -