AWESOME! I just read through this thread and to see a wonderful ending like this is so great. One less cancer in the world is one more reason to be joyful. Congrats!!!
IT'S NOT CANCER!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! The doctor at my first appointment said that it is lacking the markers that make it malignant. It is not cloning and it's not going to go into any other part of my body. The lumps are actually shrinking and some of them have completely gone away. I have changed my diet to a completely raw veggies and fruit diet. I have dropped 30lbs and I am feeling SO healthy and good. The doctor said that I could get rid of these lumps through diet and it is happening. I have gotten a few new ones, but the old ones are going through a phase where they are getting really big and painful and even hot to the touch and then they shrink and go away. They are pretty puzzled, but the important thing is - IT'S NOT MALIGNANT! Thanks for all your prayers...
Still no answers... My CAT scan was yesterday and I should be getting the results for that at the end of the week. I sent my biopsy to a specialist for a second opinion. I had to send the biopsy clear across the country to find a specialist that has seen this cancer before. In the last decade there have only been 100 cases world wide. That is 10 cases a year world wide. How did I become one of those ten? I haven't gotten any results on staging or anything like that yet. My appointment is with a doctor that has NEVER treated this kind of cancer before, he has never even seen it. So, I am also on the hunt for a new doctor that has seen this. I am feeling really good. I feel so energetic and healthy, it's hard to believe that I need treatment. I will keep everybody following this post informed. Thank you for your prayers, I can feel them over the miles...
Sorry that you are sick. I heard usually for lymphoma the treatment is chemo and maybe radiation, but a bright side is that lymphoma is a cancer that responds really well to chemo. Just remember that your family is there for you use them as a source of strength to help get you through. What stage is it? Do you know? I know you are going to be fine. I would search the internet for a leukemia and lymphoma website with a forum or support group. They may give you more answers and help you and your family make it through. Stay positive I know it seems impossible, but one day you will look back on this.
Much love
Hi there, just want to let you know that what your going through is normal. I went through similar things. I had bad results to begin with and had to wait the two weeks but all is good now. The waiting is the worst part, just try and stay positive. The technology they have these days is amazing. The cancer Doctors are professionals as they deal with this kind of thing everyday. Although it doesn't make it any easier they know what there doing. Stay strong. I'll keep you in my prayers.
Yesterday was a hellacious day. The diagnosis is Subcutaneous Pinniculitis-Like T-cell Lymphoma. I don't know anything else yet. It seems like I am running around like a chicken with my head cut off and I can't get any straight answers or anyone to even talk to me. I made so many phone calls yesterday that led nowhere. I have to get a referral tomorrow for a cancer doctor and figure out what I need to do next... I am so scared, lots and lots of crying, I didn't want my family to have to go through this. I didn't want to have to fight anything like this. I am praying for strength.
I'm not exactly sure what to make of it either. Good luck and just want to let you know I am still checking up on you keep us posted.
I have had the biopsy. For an update of anybody listening. The lumps in my legs and the one in my breast were related. They were made out of the same thing. They are all solid masses. The doctor doing the biopsy had a look on his face like he had just seen an alien. He was most puzzled that they were all the same thing. He acted very confused and told me that he didn't know what to think of it - he said they were stumped... So, I am on my 7 to 10 day count down. Tomorrow is Mon. and will be my 7th day, so I should be hearing any time now.
unfortunately your symptoms soundthe same as mine were..........i had a routine mammogramand it was clear 10 weeks later i found a small lump in the same placeas you........doctors diagnosed breast cancer, within 3 days i had a lumpectomy i had to wait 3 weeks then as it was over christmas and new year,,,,,then they dropped the bombshell it wasn't breast cancer but angiosarcoma.........very rare and very aggressive, plus they hadn't removed it all so i had a second op. since thenit has been clear and i'm nearing my 5 yr clear mark.they didnt treat with chemo or radiotherapy as i was told it wouldnt be any use for this type of cancer........boy was i scared!........since then i had check ups every 3 mths for the first 2 yrs then every 6mths up to now....hoping for yearly ones after my next appointment...........i met 2 people who also had angiosarcoma and they started producing lumps on their limbs too as secondaries and had them removed.......at the moment ihave hundreds [ yes no exageration] of miniscule lumps that follow the rib cage and up the middle of the breast bone.......they hurt to press i also havel ots in my arms and legs...........i have been told they are only lipomas [ fatty lumps] but it seems very strange to me that they all appeared at the same time ......on the xrays they show up too! but i'm no doctor and have to be guided by what they say but because of the angiosarcoma i am worried aboutit all the time!..........i hope yours turn out to be fatty lumps too!....by the waythe biopsiesfrightened me to death but honestly i didnt feel a thing and i had both the fine needle and the harvest punch biopsy on the same day........so to answer your question..........yes SOME cancers can grow that fast and yes the other lumps COULD be related........let us knowhow you get on
best wishes
Pauline
Sorry about your problems. I too am going through things like this. Not really sure what to say but be strong even though it is really hard.