Ok, so here is a long background. My daughter was born prematurely at 27wks. She left the NICU in only 3 weeks. She has always been sickly. She has constant URI and takes breathing treatments twice a day. I first noticed pea sized nodules on the back of her neck and behind her ears when she was 1. Until recently, they remained unchanged. About a month ago, we noticed the nodules had become larger and there were more. I took her to the Dr. 2 wks ago. They did a CBC, CMP, and EBV titter. All labs came back normal, with the exception of Blood Glucose level being 116. She has had no recent infections, no antibiotics were given. I am a nurse, and upon reviewing all of her symptoms( enlarged tonsils and adnoids since 2yo, low grade fever usually 99-100 at all times, night sweats, low body weight she weighs only 39 pounds, and she sleeps 14 hours a day) I demand her ped Dr. take a second look. When we got there she said the lymph nodes were bigger and more in quantity, she has swollen lymphnodes in her groin and underarms as well. She had a temp of 100.1, and looked very peaked. She had lost 2 pounds since the visit 2 wks before. Her spleen also felt enlarged. The Dr. refered us to the children's hospital general surgery for a biopsy, to ENT for tonsil and adnoid (adenoid) removal, and to infectious disease. She did not order a ct or x-ray. i called today to demand one or the other to hopefully speed the process along. I am looking for similar stories.....do you have a child who was diagnosed with NHL? Her ped tried to act calm but I could tell there was something worrying her. I have been telling them four 4 years now that there is something wrong with my daughter. Finally they are listening. No child should sleep 14 hours a day, she starts K this august and I really just need some input. I am scared to death, in my heart I know she has NHL. Any advice, words of encouragement, or stories are welcome.
I would like to add she was negative for strep, mono, and flu. Her lymphnodes are hard, not tender, and not mobile. They range in size, the biggest are under her chin, just estimating, i would say it is the size of a soda pop lid.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.