I need some help in understanding what is going on with my daughter. Here is an outline to date:
(1) She was having headaches on a regular basis and dizzy spells. We talked about it with her pediatrician during her last routine checkup. Her pediatrician sent her out for an MRI.
(2) MRI comes back abnormal and shows evidence of lesions in her cerebellum with possible calcification (which may indicate that it is an old stroke).
(3) We are sent to a neurologist who then orders a CT Scan (shows the same thing as the MRI) and and EEG which comes back normal. We asked for an echocardiagram.
(4) The echocardiagram shows evidence of an intral atrial septal aneursym. We have recently met with a pediatric cardiologist is verified that it is there, and we are scheduled to go back for a contrast ECHO to try and determine if there is also a PFO.
(5) Her pediatrician ordered blood test. Two so far have come back abnormal. Her ANA test was positive (which I believe is a test for autoimmune disease) and her anticoagulation count is high.
(6) The hemotolagist first suspected Lupus, so asked the pediatrician for more blood for more test. Those came back normal for the lupus test, but we are now being sent to the Thrombosis Clinic at St. Jude.
Her pediatrician would not tell me anything but that the doctors at St. Jude would explain it all to me.
Is there anyone that might could explain what is going on to me? Can all of this be related? What does it mean to test positive for ANA and have a high anticoagulation count? Is it possible that there is a blood disorder going on? Any help would be greatly appreciated. The waiting is killing me.
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