Please tell me what you think

My husban is two years out on his bone marrow transplant, he had stage 4 non hodgins lymphoma, they call it cll. The Dr said he is doing good in remission , but, Gary is TIRED all the time, his back  itches , he is loosing weight because he isn't 'hungry, he almost passes out when he exert himself. He has a caugh too. he is getting the night sweats again sometimes not all the time. We don't know what to think ...when the Dr. say yes your fine...your blood work it good. help please....is this how he will have to live? he complains with his stomach too...

[Londres70]

Confused.  Does your husband have Non-Hodgkins's Lymphoma (NHL) or Chronic Lymphocytic Leukemia (CLL)?  They are not the same.  

[SebringGator]

He has both, he started out with non hodgkins lymphoma stage 4 and after his bone marrow they told him he still had CLL...We are so confused the Dr. is not good at telling us anything, execpt your blood work  looks good...

[SebringGator]

I am going by what they told us after his bone marrow transplant, they said he still has CLL...I said he has cancer in his blood still yet and they said yes.

[Londres70]

Well, CLL is a blood cancer and NHL is a cancer of the lymphatic system.

You sound totally confused.  I would seek a second opinion about your husband's situation if you can.  I am wondering if the bone marrow transplant is failing, and if he is still in remission as this physician states.  

Does this physician visually show you his lab results,etc?  I would start asking for copies of his lab results, etc. if you all are going to continue to deal with this physician.  Have you told the physician your concerns?  If you all have and you feel you are not getting answers please move on to someone who will give you answers.  

[SebringGator]

Thanks for your help, I will talk to the Dr again and maybe its time to move on to another Dr, Thanks again...  Virginia

[Londres70]

Please keep us posted.  

All the best for you and your husband.

Bonjour.

[ziji]

I have CLL. I would get to a major cancer center as soon as possible for rediagnosis. M D Anderson was my choice. And do it soon. So sorry this is happening to you.