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dx- ewing sarcoma soft tissue- rt kidney removed
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dx- ewing sarcoma soft tissue- rt kidney removed

21yr old daughter had Rt kidney removed in Jan. Diagnosis is Ewing Sarcoma of the soft tissue. PETCT shows cancer has not spread. Chemo started Feb 2010. Same chemo used for children with Ewing Sarcoma in the bone. We where told that her prognosis is excellent because the cancer has not spread, her age and that she has no other health issues. Can't seem to find info on studies, prognosis, or if anyone else her age has this. We have been told she is the only one in her age group in a practice with 44 providers and 22 locations.

As Mom, I'm looking for more information on the soft tissue Ewing sarcoma.
Are we doing the right thing?
What else should we be doing?
Do we need to get a second option even thou we are 1/2 way through 4 months of chemo?
Help! Any Help! Please....
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drake801
bloomingburg, NY