sebacceous gland and lymphoma

Hi

Im Sara, Im a Registered Nurse. To cut it short as my history is long, Im so scared right now and am trying to find the right diagnosis, but unfortunately need a doctor to order the tests for me, and my low-income insurance doctor is too book to see me except once monthly and can't seem to fax referals to the needed specialists over. The ER is of no use as the MD stated the provided emergent, not chronic care. But I fear I am dying for I feel that way. Has anyone ever heard of Sebaceaous gland carcinoma, malignancy? I just find it odd, with all my symtomps, that this one gland reocurs with what they think to be a MRSA infection and I have sebaceaous gland hyperplasia and that benign carcinomas run in our family. With lymphoma, my friend just died from it, just a few years older than I. I am 23. She had the same symtpoms as I do and her diagnosis was delayed. My doctor always told me not to be concerened about my swollen lymph nodes, even from 6th grade when I noticed it, saying it would go away. I need a simple blood test, and LDH-detects tissue damage and cancer, but no doctor will order one as my insurance wont pay for it unless cancer is suspected which means I must see a specialist. Whats wrong with me and what, other than cancer, could cause symtoms (symptoms) and a progression of disease such as mine? Oh, Muir Toure syndrome anyone heard of it? -all stuff I found out runs in the family, some went undiagnosed.

Symtoms (symptoms):
-Neuro- Tingling/numbness in extremities/paresthesias. Like they fell asleep often it gets so bad.

-Severe neck, low back pain, joint pain, Vicodin no longer works, I don't even bother with OTC meds. My knees felt like grapefruits this morning.

-Exhaustion so complete Im so tired it hurts. It hurts.

-POsitive ANA, lupus diagnosis, fibromyalgia diagnosis,

-GI history like no other-check out Meckels diverticulum and those are my symtpoms-in/out of hospital for that one.

-Sebacceuous cell hyperplasia, swollen nontender lymph noded

-Dried blood in nose/on/off mouth sores

-osteopenia, soft bones/teeth, prontate ankles, cervical kyphosis.

-Elevated liver enzymes, forgot that one. Dark urine now, retention.

-History of depression and psych illness, but I am gratefull that I have the level of acceptancer and happiness I have in my life today and am 9 months free from any self harm, eating disorder, or suidical ideation. Thats a miracle.

Due to my psych history often doctors shove it off as that. Im sorry, its not. Addictio, Eating disorder, and Psychiatry are up and coming in medicine and therefore are the easiest things to blame things on, while pseudo-addiction and actual diseases are being over looked. In my humble oppinion.

Does anyone have any experience, strength, or hope to share?

[oona]

Have you done a CBC? What are the results of that? I think that a lot of your symptoms could be attributed to the Lupus, but if you need to rule out cancer, that's important for your piece of mind. Is there anyway that you can get a scan? How elevated are your liver enzymes and what test did you have done for that (blood & or ultrasound)? I am in a similar situation, with many very scary symptoms, and am awaiting a diagnosis. I do have an abdominal CT set for Dec., but worry about the same things as you. I have also had a positive ANA twice.  Do you have any friends or family that can support you with this? What about using a Lupus helpline or trying to find a support group assist you in getting the tests you need? You're right to want to pursue your health in this way, you're your own best advocate. Another important thing to remember is to try not to worry too much, but that doesn't mean ignoring your symptoms to the point of abandoning a diagnosis. At the same time, a Lupus helpline might be able to discuss with you your symptoms and let you know if what's happening could be related to that. Are you taking any medication for your Lupus? I've heard that sometimes steroid medications can cause osteopenia.  

Best of luck and hope you feel better soon.