CELIAC (SPRUE) DISEASE COMMUNITY
2 year followup enteroscopy

2 year followup enteroscopy

Hi everyone,

After two years gluten free, my tTG went through the roof. It was initially 28 (range <10) in 2009, then it was 26 (range <10) in 2010 and now it is 186 (range <10). I had a scope this morning with an extension on it to look further in the small bowel (called a Enteroscopy). The initial results are below. The doctor came and spoke to me. He said my results showed text book advanced celiac and will likely show total villous atrophy. When I was original diagnosed, I was at Marsh 3b (subtotal atrophy). He said when the biopsy results come back, he will also send them to another hospital for CD3/CD4 staining. He said the odds of occult lymphoma or refractory sprue are low, but he can't rule anything out until the biopsy comes back. I don't understand, if there was no tumor or mass, how could lymphoma even still be an option? Does anybody know anything about CD3/CD4? Thanks a lot!

Procedure Results:
- Normal esophagus appearance
- Normal stomach appear (1 biopsy taken)
- Abnormal small bowel appearance
   - mucosal atrophy
   - "cracked cement" appearance
   - mucosal scalloping
   - mucosal ridging
   - 5 biopsies taken
   - 0 mass lessons found

Diagnosis/Treatment:
Need to rule out refractory sprue
Biopsies taken for CD3/CD4 staining
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