CELIAC (SPRUE) DISEASE COMMUNITY
Severe Celiac Disease

Severe Celiac Disease

Hi all,
I am a 16 year old girl with Celiac Disease. It is not new to me, for I have been diagnosed when I was 22 months old. For many people, they can eat a peice of wheat bread and maybe get a stomach ache, but for me, it is much much different. One crumb is all it takes. And, once that tiny but of gluten is ingested, its not pretty. I violently vomit for hours straight (my last reaction was 6 hours long!). So, I was just wondering if anyone else was severe as I was?
Thanks!
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1728693_tn?1332168862
My niece had the same issue. As a child she almost passed away it was so severe - once she adjusted her diet she got better and just graduated from University this past year!

From what I remember her telling me,l it seems the key is discipline, and when you're a teenager, I remember my niece having a tough time as she was the only one that had the gluten-free restriction.
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Avatar_f_tn
Yes, discipline is most diffidently key!
Thanks, its re-assuring to know that others are as severe as me(:  
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1794671_tn?1324620769
I have had it for a long time but I wasn't diagnosed until I was 17. I remember being young and eating ravioli and feeling so full and bloated. My mom would make me peanut butter and jelly, every day for lunch. She didn't know it wasn't her fault for giving it to me, but in all honestly they say that when you are allergic to someting it helps to implement it little by little to get your body used to it. NOT IN THIS CASE NOT WITH CELIAC DISEASE!!! however eating gluten all those years kinda did just that to me, ONLY ME, becase now when I eat something, because of lack of strong will, I get a little reaction. I know it doesn't make sense why I am sharing this with you, but since you were diagnosed at such a young age you were lucky enough to have parents that took care of you and had you tested and taken care of, therefore you are SUPER intolerant. This is a good sign!! This means that your body has not gone through very much negative exposure. WIth me, I have had a lot and it is not good for my body and I wish that I have had the ability to know earlier and been able to help my other ailmetns that i acquired from having celiac disease. Just know that having such a strong reaction is a blessing as well as a curse. You are strong and you can do it!
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1340994_tn?1314365169
I guess in a way it is helpful to get quick feedback when you eat something wrong.  It is frustrating to wonder exactly when the illness began and how something got cross-contaminated.  
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