I was dx'd after 2 yrs of symptoms that didn't quite match celiac. I was constipated but lost lot of weight. Finally Jan of 2010 new MD dx'd celiac. I followed the diet faithfully but gas and pain every 12 hours was still there. Wakes me up at 4am and hurts must move can't go back to sleep. NOW for the past 3 wks the symptoms are almost 24/7. I have taken bentyl (no relief). I am getting scared. I will see my GI MD soon but why no relief? I confess I have eaten some gluten usually not realizing it. My blood test was orig 148 and is now 40 Could it be something else?
Do you eat dairy? Many Celiacs also must avoid dairy because the protein casein is similar to gluten. Also I just learned that my body does not like soy so you might want see what happens if you avoid soy.
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