What should we ask the neurologist?

We recently returned home 3 weeks ago from adopting our 2nd child from Guatemala,  He is 11 mos. old.  Our frist child we had biologically.  We have know about our son since he was 6 weeks old.  We received pictures, videos and monthly medical reports on our son.  ----everyone reported he was "normal", and on track.  

I am a special education teacher, but have no medical background.  To make a long story short, we noticed MANY things that were 'off' about our son while we were in Guatemala.  We knew being an international adoption that he would not be up to par on all his delvep. milestones.  However, we noticed that he never seems to use his right hand or right leg very much.  Also, when I changed his diaper, he would bring his legs in and they seemed tight.  He also arches his back a bit he you are holding him, especially if he does not want to be held.
We are finally back in the stated.  The MRI shows a brain insult, and that his symtoms (symptoms) are most consistant with that of PVL.  

We have a neurologost appt. on Friday.  What should we ask him?  Our son can sit indpendantly, likes to "walk" in a a walker and "jump" in a jumper.  If you hold his hands, he will walk across the room.  He also babbles incesently.  

Any advice you could provide would be greatly appreicated.

Thank you,

Mschuetze

[Dennis MD]

Hi.
I’m sorry to hear about you son’s condition.
Periventricular Leukomalacia (PVL) is a condition most commonly seen in preterm infants.  It is caused by an inadequate blood supply in the periventricular area of the brain.  Because of the inadequate blood supply, that area of the brain may die and is converted to a cyst-like structure filled with fluid.  
Risk factors for the development of PVL include infection in the baby or mother, low blood pressure, and low oxygen levels in the baby’s blood for prolonged periods.  
Imaging modalities that can help in the diagnosis include ultrasound, MRI scan and CT scan of the brain.  
PVL is an important cause of cerebral palsy, developmental delays, and behavior problems.  
Perhaps you should ask your son’s neurologist on the possible treatment, its outcome, and prognosis.
Good luck.