help me please, what is happening to me ?

[Vanessa1971]

Hi,
I'm a 37 year old woman with moderate CP spastic / ataxic diplegia, with all 4 limbs affected. Legs spastic, arms less so, poor fine and gross coordination.

Over the last 2 or 3 years, I have become worse, big increase in pain, decrease in energy and flexibility. Lots of nerve symptoms, burning stinging pain, tingling, numbness, abnormal reaction to touch.
I am now being worked up for MS with MRI s first 2 scans seemed to show different lesions which makes them more suspicious.

I am getting less and less able to function, I can't use my left hand because of the nerve pain, I've started drooling which was never a problem in the past.

I am currently on 5 different medications just trying to deal with the nerve pain. No one has any answers for me, and I am in the middle of applying for disability since I can no longer work.

Also I've had a sleep study which showed very poor sleep efficiency, with alpha wave disturbances.

[as77]

Hi Vanessa, I just wanted to say to you that I am not a doctor, I dont know alot about whats happening with you but i am here if you need someone to chat to about anything at all. I know that talking can releive alot of anxiety and stress. I work with people with disabilities as a social worker and I do alot of support work. In my field I find that often people are afraid of things that they dont understand and really need to talk about them.
I am here if you want to talk, if not I hope that all goes well for you and that you get the answers that you need.

[niki1971]

I Just wanted you to know that when I read you story it was like you were writing about me... Everything you are going threw I am Going threw to. I am 37 years old with CP (effects my legs mostly) I know that cp does not change,But over time can cause other things to happen.I was told yesterday   that I have Brain Lesion Demyelinating and I have to go see a nurologist to find out what is going on. It Is not cp but something else. For the past 8 years I have been going to Doctors and telling them the different things that I am going threw and they all say it is my cp. Well now I finally found one that looked past the CP and found out more. I am nervous that I could have Ms and CP . Well now its just wait and see. I hope this helped A little.