Hi. I have a nephew, Mason, who was dignosed with Burketts Lymphoma about a year ago. When diagnosed, he had an abdominal tumor. After chemo and surgery (I think), the tumor was gone, and the cancer went into remission within three months. Shortly thereafter, he began having headaches and tests showed that there were cancer cells in his CNS. Scans showed no tumors. They did another round of chemo, remission was acheived again, and he then received a bone marrow transplant form his younger brother. Although the transplant was successful, he relapsed again. I believe he has received marrow twice from his younger brother. Recent Omaaya tap showed 300 white. The doctors believe that the disease may have mutated and become "invisible" to his own immune system. They have started another round of chemo, and his numbers went down to 33, then to 5. The cancer is still responding to chemo, but the doctors think this will only help him in the short term. The family is looking for any information about treating Burketts relapse after bone marrow. If any doctors or professionals here have sucessfully treated Burketts relapse after bone marrow transplant, or know of any professionals who have had success, any info would be much appreciated.
I am afraid that there may be limited standard options available for Mason at this time, having relapsed after stem cell transplant for high grade lymphoma.
There are many promising investigational or novel therapies presently undergoing clinical trials.
You could discuss with the treating oncologist the possibility of enrolling Mason into a suitable trial.
All the best, and God Bless!
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