I have read many of the posts and I am happy to find other people who suffer from some of the same symptoms that I do. I have noticed lately that sometimes whem I get a shooting/zapping pain from the back of my head to the front my tongue curls and freezes up for about a min and I can't talk. Has anyone else evr had this happen?
I get something similar. some times when I turn my head or look up etc. I get the shooting/zapping pain but everything goes black. basically it feels like I'm on pause. I can't talk ,see , I don't want to move for fear of falling. trying to hide these episodes are hard. one nasty lady at work is telling everyone I am a drug addict. i have many other symptoms. but ur not alone or crazy! my herniation is only 3mm and I have neck trauma. and nerve damage.
I personally never had that exact symptom, but we r all diff, and will have diff experiences with this condition.....but many times we have something very similar, but affects us just a bit differently. The same issue is causing it, just in diff locations of the body.
There have been times where I felt frozen and could not respond...and it is not something that goes un noticed....
Have u been able to locate a true chiari specialist?
My herniation was 4mm in 2005. I am going for mri in March to see if there has been any change. My symptoms come and go and the list is long but when there are multiple symptoms present at once it is the worst feeling in the world. I get very embarassed when these weird things happen in front of people I don't know. People can be cruel. Thank You for replying to my post.
I don't think I have been checked for any of those. I am in the Boston area and have appointment with a Dr. Thaler at Tufts Medical. I am looking around now online to see where the specialist are in my area
I am very new here! Just got somewhat of a diagnosis last week. My regular doctor thought it was a brain tumor, so he sends me for an MRI. Turns out, I have low lying cerebral tonsils. That's all he tells me. I do have an appointment with a neurologist tomorrow morning. Very nervous. I am in MS, so I do not think there are any specialist around.
I am enjoying reading all the post. This is soooo new to me! I've been treated for EVERYTHING in the past 7 years, only to find out this is the culprit.
Glad I found this group! :)
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