11 year old with Chiari Type 1

Does anyone know statistics for outcomes for 10-11 year olds that had surgery for Chiari type 1?

[pamk5]

Hello Lisa and welcome!  I dont know the information that you are asking for.  But I did want to make sure you were at least acknowledged.  Also, to say that I am sorry that you are going thru this with your child.  It is bad enough to be an adult with this but my heart bleeds for the kids who suffer with it.  

There are risks with any surgery regardless of age.  I would make sure that the doc my child was seeing a true Chiari specialist.  There is a difference between a NS that occasionally sees Chiari patients and a NS who devotes his practice to this condition.  Does your child have a CSF blockage?  Have they been checked for a syrinx?  These are issues that do need to be addressed and can make surgery necessary to lessen the possibility of permanent nerve damage or paralysis.  

Again, welcome,  I hope you find the info and support here that you need.  

Pam

[selmaS]

  Hi and welcome to the chiari forum.

I like Pam am not aware of the stats either....but, chances will be better if u have a true chiari specialist as opposed to a reg NS.

We r all diff and will respond diff to the surgery and the meds, so it is best to get as much testing done pre op to look into the chances of issues developing.....

In addition to looking for a syrinx and a CSF obstruction make sure they check ur child for sleep apnea, and Ehlers-Danlos....these are just as important.

Not knowing where u live I will add the thread for the drs list in the USA if u need a diff list let us know...please be advised this is not meant as a referral, but a means to help u research drs....the list was compiled by the members here of their drs they went to and liked...u need to find a dr u r comfortable with and trust .

Please let us know if u have additional ?'s or concernds.

"selma"