my 18 year old son was just diagnosed last week with Chiari type I. We have seen one Neurosurgeon since, wasn't to happy with him. We are now going to check out UIC to see if we can get some answers on what our next step is.
Hes been suffering from headaches for the last 2 years and now they are just getting progressively worse. I guess right now just looking for insight on what we can expect.
First u want a NS that is a Chiari specialist...not just a NS that treats chiari, there is a huge difference.
Next make sure he is tested for all related conditions b4 u consider surgery as it is important to know as many of the related conditions can affect how he feels and heals post op.
Surgery is not a sure but a means to restore CSF flow and slow progression....
Educate urself as to what all the Dr should be doing so u will know when u find the right Dr.
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