Chiari Malformation Community
18 yr old just diagnosed
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18 yr old just diagnosed

my 18 year old son was just diagnosed last week with Chiari type I. We have seen one Neurosurgeon since, wasn't to happy with him. We are now going to check out UIC to see if we can get some answers on what our next step is.
Hes been suffering from headaches for the last 2 years and now they are just getting progressively worse. I guess right now just looking for insight on what we can expect.
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620923_tn?1452919248

  Hi and welcome to the Chiari forum.

First u want a NS that is a Chiari specialist...not just a NS that treats chiari, there is a huge difference.

Next make sure he is tested for all related conditions b4 u consider surgery as it is important to know as many of the related conditions can affect how he feels and heals post op.
Surgery is not a sure but a means to restore CSF flow and slow progression....

Educate urself as to what all the Dr should be doing so u will know when u find the right Dr.

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Thank you for information. that is our goal is to find a dr that treats chiari which is not an easy task finding. I have done some research online to educate myself with this malformation.
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620923_tn?1452919248

  We r here to help...we do have a list of Drs for u to use to research Drs...the list is not a referral nor r all Drs on true Chiari specialists....but they did treat a member here.....


  If there is neway I can help u, please let me know : )
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