Hello, today I was given my MRI Results which read '2-3 mm of cerebellar tonsillar ectopia. There is no significant crowding of the posterior fossa. No syrinx is seen within the visualized upper cervical cord.' I am 23 yr old female, 5'7 and 132 lbs. I don't not recall any head trauma. I am very concerned because I am not educated thoroughly on what this is, but from what I read I need more tests ; / . I originally was given an MRI because I was having numbness in my left foot (two toes) and then tingling in my extremities on and off. I also have a pinching feeling in my armpitts that is very painful that comes and goes. I was told from others ' it's anxiety' ...I've also had period of non stop headaches, mild but still bothersome along with neck pain....they told me this was 'tension headaches from stress' now I wonder if these symptoms are actually due to this. I have a one year old daughter, while I was pregnant my BP was always normal...now it seems as though it is low...89/60 some days. Could this also be a side effect? Any help or advice would be appreciated, I feel rather alone at this point.
Hello Jess, The best thing for you to do at this point is get your films and reports and seek out a true CM specialist. Sounds as though you have atypical CM or not enough herniation for most doc's to even call CM. The true specialists know that the size of the herniation is not important it is whether there is CSF blockage and crowding. In order to know that you will need more tests like a CINE MRI and other conditions will need to be ruled out
I have always had low end blood pressure my whole life around 110/70 most of the time. Since my accident in August (when I was diagnosed) mine has been all over the map. Dropping when I stand, rapid heart rate recently I was diagnosed with POTS (postural orthostatic tachycardic syndrome) and NMH (neurally mediated hypotension) according to the Cardiologist who did the tilt table test my brain stem is "pinched" is what is causing this. Make sure next time you are at the doc ask for orthostatic vitals to see if you have bp dropping when you stand. Also, do you ever feel like your heart is beating out of your chest? It could be related to the above. So I guess the long answer is yes it can be causing it.
Did you have natural childbirth? The pushing that comes with delivery can most certainly make a hernation worse and/or bring on symptoms and is not recommended for those people who have CM. It is recommended that they have Csections.
I hope this helps. Let us know if you have more questions.
Thank you, your replies were comforting. Yes I had a natural childbirth that included three days of back labor, I know right...not what I signed up for. lol ; D
I also have scoliosis as well, also an epidural so I thought some of these things were because of that, but I did not have these symptoms until about 4 months after delivery, so I ruled out epidural damage, and I have had scoliosis my whole life so I'm not sure that has anything to do with it. I'm not experiencing anything now but neck pain and (left big toe stinging sensation) but I believe this could also be from something else. When I stand in the morning upon getting out of bed, my first couple of steps always feels awkward, stinging or tingling if you may (as if the blood were barely flowing to them.) I also get rushing sensations in my feet, hard to explain. If I work too long my feet feel like they are, for lack of words, on fire. This made me believe I have MS, but apparently this is ruled out, and also no suspected by the docs. so now I'm left with this new diagnosis and no clue if they are related? Have you ever heard of this?
I notice that if I drink alcohol my left side seems severely affected the next day, plagued with throbbing aches in my arm hand and leg? I don't drink very often but if I do I make sure to also drink plenty of water before bed to help reduce this....could this also be an effect...or something else. Sorry for all of the questions, I am just full of them an each appt I've made in the last couple of months the doctor coincidentally does not show, and then they have so reschedule me ...so on and so on.....
It seems many of us have a form of scoliosis....some more severe than others, but we all many have it to some degree.
Many have been misdx'd with MS...so it is not so far fetched....and I know most of us r tested to rule it out as well.
What u mention sounds more like u may have a syrinx...not sure where it may be located...do u know if u were checked for a syrinx in the cervical spine, thoracic spine and the lumbar...plus u will wan to rule out tethered cord. It can be the reason u have scoliosis.
Hi...well there r many drs that will not look beyond the cervical spine for a syrinx....it is a cavity that fills with CSF fluid from a blockage in flow...the cyst can grow larger putting pressure on nerves...if left untreated, it can cause perm nerve damage.
Many of us with chiari r checked for a CSF blockage and syrinx, if we have a blockage we have surgery to help prevent the formation of a syrinx.
U should also rule out tethered cord as well, and look at ur disks as well.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.