Chiari Malformation Community
2 yrs. post chiari surgery
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

2 yrs. post chiari surgery

I had chairi surgery 2yrs years ago in may. I seem to be having some issues again, and was wondering if anyone had any advice. They are doing another MRI Friday. I'm just worried...Is it possible I am going to need another surgery?  I'm just really scared. I'm not sure if I can go throught that again.
Related Discussions
6 Comments Post a Comment
Blank
620923_tn?1426651955

  HI and welcome to the Chiari forum.

I am also at the same point post op as u..I had my surgery in May '09.....

It is possible to develop scar tissue and that can cause a CSF obstruction, the other issues could be tethered cord, ICP....or a bulging disk.

I continued t o have some issues, but do have tethered cord, and a bulging disk along with Ehlers-danlos...so I know it is not surgery related.

  I pray u get answers from ur MRI...and I would suggest u request copies of the MRI's and the report so u could get a 2nd opinion if u feel u want one depending on the results.

   Good luck
   "selma"
Blank
Avatar_f_tn
Thanks for the input. I'm sure it will be nothing and I'm just over reacting. I'm usually a cup half full kind of person, it's just the thought of having the surgery scares me to death. Thanks alot for the response. It's nice to know I'm not alone in the world.  :-)
Blank
620923_tn?1426651955

  U r deff not alone and I hope u post an update of ur results.....I am interested to hear how u do and what ur drs say is going on.

  I was told I need more surgery and am putting it off as  long as possible too, no one wants to have multiple surgeries.

I pray u get answers  soon

    "selma"
Blank
Avatar_f_tn
I keep seeing reference to a list of doctors................is there some where to look for a list of doctors that may bo in my area?
Blank
620923_tn?1426651955

  HI yes we do have a thread where members can add to the list and I have the names added to the Health Pages top right of this screen...here is the link-http://www.medhelp.org/health_pages/Neurological-Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186

As I have mentioned in the other threads, this is not a referral, the list is to help u start researching Drs...all names r of drs that members here have used, and liked...it is not all inclusive.

    "selma"
Blank
Avatar_f_tn
thanks alot. there's actually a doctor not too far from me that has alot of positive comments atleast now if something does show up i have an idea of who i can contact.

thanks again. I'm really glad i found this forum!  
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
992677_tn?1337358095
Blank
ChiariWolf is here STLL ALIVE!!!! Comment
5 hrs ago
707563_tn?1395081210
Blank
Dysautonomia Specialists updated
Apr 23 by Emily_MHModerator
13394729_tn?1429753630
Blank
greenfleshyflower joined this community
Welcome them!
Apr 22
Top Neurology Answerers
620923_tn?1426651955
Blank
selmaS
Allentown, PA
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
Avatar_m_tn
Blank
Ball123
10169340_tn?1415849761
Blank
Nellan12
Berlin, CT
979826_tn?1389039958
Blank
soccero
germantown, MD
Chiari Malformation Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1426651955
Blank
selmaS
Allentown, PA
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
7530528_tn?1428275172
Blank
AKC_75
TX
Avatar_m_tn
Blank
Ball123
10169340_tn?1415849761
Blank
Nellan12
Berlin, CT
979826_tn?1389039958
Blank
soccero
germantown, MD