Hi all, I havent been here for awhile because I have been......drum roll.... busy. Some of you have been so kind as to wonder how I am.
I think that I have been VERY fortunate: the Chiari malformation was the source of my numerous symptoms, and I do not have any underlying conditions, including diseases of civilization.
I spent 16 years misdiagnosed, & sometimes I feel sad/angry about that. If I were younger, I could maybe return to work. But meanwhile, I have several years of filing, housework, mending, sorting, socializing, etc. to catch up on.
I even took a 3 hr. class on foraging. (it was 39 degrees & pouring rain too!).
I had the usual 30 symptoms, but now I still have some nausea (which I learned to ignore), & my body temp is still erratic. My head will feel feverish while my feet are ice cold. The more I do, the worse the dysautonomia is.
I take only ibuprofen prn.
Oh, I had a sinus infection, for months, that held my recovery back! As soon as that was treated, I felt better immediately.
Selma, you have such patience and are so generous with your time--Thank you for being here! I miss you (and y'all), and I know you will remember to remind people to never, ever give up on being optimistic. I lost 16 years of my health--some of it really in suffering--but now, I kinda feel like Rip van Winkle must have felt, waking up to a new reality.
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