Chiari Malformation Community
8 months post up
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This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

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8 months post up

Hi all, I havent been here  for awhile because I have been......drum roll.... busy.  Some of you have been so kind as to wonder how I am.

I think that I have been VERY fortunate:  the Chiari malformation was the source of my numerous symptoms, and I do not have any underlying conditions, including diseases of civilization.
I spent 16 years misdiagnosed, & sometimes I feel sad/angry about that.  If I were younger, I could maybe return to work.  But meanwhile, I have several years of filing, housework, mending, sorting, socializing, etc. to catch up on.
I even took a 3 hr. class on foraging. (it was 39 degrees & pouring rain too!).

I had the usual 30 symptoms, but now I still have some nausea (which I learned to ignore), & my body temp is still erratic.  My head will feel feverish while my feet are ice cold.  The more I do, the worse the dysautonomia is.
I take only ibuprofen prn.

Oh, I had a sinus infection, for months, that held my recovery back!  As soon as that was treated, I felt better immediately.

Happy spring!
5 Comments Post a Comment
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4816750_tn?1368808270
I am glad you are feeling better.  I am 9 months and feel great also.  So keep up the awesome work.
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620923_tn?1426651955

  I am so happy for u, and that u finally are able to be busy....but I do miss u...but can not be happier that u r getting on with life : )

<3
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Selma, you have such patience and are so generous with your time--Thank you for being here!  I miss you (and y'all), and I know you will remember to remind people to never, ever give up on being optimistic.  I lost 16 years of my health--some of it really in suffering--but now, I kinda feel like Rip van Winkle must have felt, waking up to a new reality.
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620923_tn?1426651955

  Aww thanks Viv....miss u too : (

But like I said I am  so happy for u.....and I pray u continue to have a positive outlook and promise of good health <3
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I should add that I have a fantastic NS; he operated in less time than he allotted, no staples, small incision.
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