9mm chiari malformation

[Jason2848]

I just found out I have a 9 mm benign cerebellar tonsillar ectopia I've been having headaches for over two months I'm nervous about the surgery has any one been threw this

[selmaS]

  Hi Jason and thank you for coming back and updating us.....when you are ready to write up your experience please use the journal in the profile page and post a link to that ...this way you can continue to add to it and it will be easily found not only by us but also by you....you can not edit a thread here on the public forum....and in a journal you can...so it is easier not only to add to but make corrections.

Thanks again and I am sending you healing MoJo for a smooth recovery.

[Jason2848]

A lot has happened sence November we found out it was a brain tumor had it removed April 22nd and I'm recovering now I'm going to write it all up I hope it will help someone out there that is going threw this it might take a while but I am going to work on it this is a scary thing to go threw I have to get all the facts from the dr tomorrow and what it was called and I will start

[Elisaandbucky]

I echo the words of Nellan and Selma. Find a specialist, keep a very in depth pain and symptom journal to help you in your consultations. Always try to find opportunities to be still and to rest. And, most importantly, please come back to report your process so that we can keep current with you and make you feel that you Re not alone in this. We all have each other's back.

[Jason2848]

I saw my regular Dr today we do not have a neurosurgeon here so she sent the images to one out of town they can't tell exactly what it is so they are ordering a MRA and I am referred to the neurosurgeon

[Jason2848]

I have a doctors appointment on Monday we will see what they say thank you so much

[selmaS]

   Hi  and welcome to the Chiari forum,

I have  to agree  with Nellan12 ...do  more  research....surgery is not a cure...ask why  they  feel you  may  be  a  candidate for  surgery.....a  CINE MRI will help see if you  have  a CSF  obstruction....then MRI's of the thoracic and lumbar spine  to  rule out disk issues and  a syrinx ( Syringomyelia)

  Ruling  out  ALL  related  conditions  is very  important as they  can  affect  recovery  should you move  forward with surgery.

Educate yourself, research Drs...and take your  time....not all with Chiari  require  surgery  and it is not  the length  but  if  an obstruction  is there....also  know  many of  the  related conditions  can  cause  some of the  same  symptoms as  Chiari.

To  research Drs  see  our list in the Health Pages.....keep  in mind  our  list  is not  a referral  nor an  endorsement...it is only  meant  to  be  a tool,  a starting place  for  your research.

Know  you are  not  alone....

As  for  those  that  have  been thru  this,,,,I  had  surgery  5  yrs  ago....and I  would  do it  again....no  regrets....I did  have one of the top  Drs in Chiari....so,I was  lucky  in I  did  my  research  and  took  my  time  to find  the right  Dr  for me,  you  will  too.

[Nellan12]

Hi 9mm sounds like good size Chiari?? Have you seen a Nerologist or a neurosugent for it yet ?? See what they say also see if you can get an  chine MRI to see the CFS flo ...then the NS can really tell you if you need surgery ... But before you jump into it make sure you do a lot of research, find a good Chiari specialist who also understand about Siringo, and Pseudotumor and all related conditions.. You want to make sure you get the best consult.. Before you make that decision ...good luck keep us posted!!!