Chiari Malformation Community
AUSTRALIAN CHIARI SPECIALIST
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

AUSTRALIAN CHIARI SPECIALIST

Hi everybody I am new here name is Vikki.  I was diagnosed with Chiari just prior to Christmas and was wondering if anybody knew of a good neuro that knows about Chiari in Melboirne , Australia?  I have had symptoms all my life.  It only got diagnosed because my entire left side went numb and they thought I had a stroke so a CT and 2 MRI later CHIARI 1MALFORMATION!  Of course they didn't take my history so told me it was nothing and sent me home with a diagnosis of maybe it was a virus! Apparently this is quite common especially in Australia, so any input would be most welcome. Thank god my GP knew more about it than the arrogant neuro at the hospital.  Look forward to your comments.  vikki
Related Discussions
3 Comments Post a Comment
Blank
620923_tn?1426651955

  Hi and welcome to the Chiari forum.

We did start a list of Drs for ur corner of the world...it is by no means a large list as drs names r added by the members....and we do not get as many from down under, but we r trying to keep a list to help...and I also do not know if ne of the Drs r in ur area, u may have to travel to get to a dr that not only knows what chiari is, but is experienced in working with it too.

http://www.medhelp.org/posts/Chiari-Malformation/CHIARI-DRS-LIST-Australia/show/1314732
The list is not a referral, but a means to help u research Drs.

Finding a Dr is a good part of this journey. getting the Dx can be the hard part...so, u r over a good portion of the hump....keep pushing forward.

And just bcuz we r not on ur continent doesn't mean we can't be a sounding board....know u r not alone : )

    "selma"
Blank
1994417_tn?1328005669
Thanks heaps I have seen a few diff support groups but this one seems more upbeat and positive which is nice :-)
Blank
620923_tn?1426651955

  Well I am glad to welcome u to the group, just sorry for the reasons u had to seek us out!

  If u find ne other NS's down under that r not on our list, please let us know : )


   "selma"
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
13556457_tn?1430481345
Blank
TLeigh71 joined this community
Welcome them!
May 01
13556457_tn?1430481345
Blank
TLeigh71 having a very blessed day!!... Comment
May 01
13556457_tn?1430481345
Blank
TLeigh71 joined this community
Welcome them!
May 01
Top Neurology Answerers
620923_tn?1426651955
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
7530528_tn?1428275172
Blank
AKC_75
TX
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
979826_tn?1389039958
Blank
soccero
germantown, MD
7489440_tn?1422931913
Blank
kwalker0004
Pocomoke, MD
Chiari Malformation Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1426651955
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
7530528_tn?1428275172
Blank
AKC_75
TX
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
979826_tn?1389039958
Blank
soccero
germantown, MD
7489440_tn?1422931913
Blank
kwalker0004
Pocomoke, MD