Chiari Malformation Community
AUSTRALIAN CHIARI SPECIALIST
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

AUSTRALIAN CHIARI SPECIALIST

Hi everybody I am new here name is Vikki.  I was diagnosed with Chiari just prior to Christmas and was wondering if anybody knew of a good neuro that knows about Chiari in Melboirne , Australia?  I have had symptoms all my life.  It only got diagnosed because my entire left side went numb and they thought I had a stroke so a CT and 2 MRI later CHIARI 1MALFORMATION!  Of course they didn't take my history so told me it was nothing and sent me home with a diagnosis of maybe it was a virus! Apparently this is quite common especially in Australia, so any input would be most welcome. Thank god my GP knew more about it than the arrogant neuro at the hospital.  Look forward to your comments.  vikki
Related Discussions
3 Comments Post a Comment
Blank
620923_tn?1405964489

  Hi and welcome to the Chiari forum.

We did start a list of Drs for ur corner of the world...it is by no means a large list as drs names r added by the members....and we do not get as many from down under, but we r trying to keep a list to help...and I also do not know if ne of the Drs r in ur area, u may have to travel to get to a dr that not only knows what chiari is, but is experienced in working with it too.

http://www.medhelp.org/posts/Chiari-Malformation/CHIARI-DRS-LIST-Australia/show/1314732
The list is not a referral, but a means to help u research Drs.

Finding a Dr is a good part of this journey. getting the Dx can be the hard part...so, u r over a good portion of the hump....keep pushing forward.

And just bcuz we r not on ur continent doesn't mean we can't be a sounding board....know u r not alone : )

    "selma"
Blank
1994417_tn?1328005669
Thanks heaps I have seen a few diff support groups but this one seems more upbeat and positive which is nice :-)
Blank
620923_tn?1405964489

  Well I am glad to welcome u to the group, just sorry for the reasons u had to seek us out!

  If u find ne other NS's down under that r not on our list, please let us know : )


   "selma"
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
1755089_tn?1376057155
Blank
drewlevas uploaded new photos
7 hrs ago
1751596_tn?1406776760
Blank
kristy12 joined this community
Welcome them!
22 hrs ago
1751596_tn?1406776760
Blank
kristy12 joined this community
Welcome them!
22 hrs ago
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
1667208_tn?1333111449
Blank
zygy2
NH
7489440_tn?1392096009
Blank
kwalker0004
Pocomoke, MD
979826_tn?1389039958
Blank
soccero
germantown, MD
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
1667208_tn?1333111449
Blank
zygy2
NH
7489440_tn?1392096009
Blank
kwalker0004
Pocomoke, MD
979826_tn?1389039958
Blank
soccero
germantown, MD