Good Luck and keep us posted
Thank you so much everyone! I have PT today and I'm going to talk to him about all of this and possibly discontinue PT. I have an appointment with a neurosurgeon who specializes in chiari on November 1 so hopefully I will have more info then!
I really believe that the PT tech is not familiar with our issues and is not using the right exercises/stretches...I had PT at one point too, and it made me worse too....I later found out some of the reasons why but my questions were and continue to be why didn't the PT tech see what was going on....why didn't they recognize what my issues were? This was b4 my decompression surgery, but it was EDS related....and something I feel the PT should be aware of. Luckily for me I never went to PT post op and my surgeon said it was good I didn't as it would have made me worse.
We have to listen to our bodies....
Thank you so much for your advice Initwithyou! I don't want surgery unless it's the last resort and I'm open to PT. I just didn't want to be discounted by the doctor or to be told what my symptoms were when I didn't have those particular symptoms. Thank you for the doctors name!!
There is some wisdom in what the neurosurgeon told you. There are several different types of Physical Therapy that might be able to help you. CranioSacral, Myofascial Release and Postural Restoration are some that come to mind. These therapists are specially trained. I just sent someone who had Chiari symptoms to neurosurgeon who deals with Chiari. She told him his symptoms are definitely from his large syrinx of the cervical spine but not to do surgery until he really can't handle it anymore as there are no guarantees and its a big surgery so not all Chiari should be surgical. I have had two surgeries as the first surgeon didn't really know what she was doing. A second opinion is always a good idea. Another surgeon that will look at your MRI and medical record is Dr. Heffez from Wisconsin Chiari Center, Milwaukee, WI.
Oh I'm sorry you had that response. I got similar responses when I went to drs locally. My suggestion would be to keep searching for the right dr. Did you get a copy of you MRI (the disc and report)? If not, get them and take them with you.
I hope you are feeling good today, despite that appoimtment.