Chiari Malformation Community
Any other "re-do" Chiarians out there?
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Any other "re-do" Chiarians out there?

My daughter will have a second surgery to try to relieve every chiari symptom in the book (and live through it).  How many others are going to have to re-do the surgery?  If you have already gone throught this twice, any better results?  Any recommendations?
Related Discussions
2 Comments Post a Comment
Blank
620923 tn?1452919248
Hi...I know zipperhead0609 ( Janet) had a revision...hers was bcuz the first surgeon left a staple inside and it caused a CSF leak.

She has had a set back after the revision, but she moved to TX in the meantime and has not kept in touch......

I do know there r others , and they r doing well.....it all depends on y the revision is needed....infection, rejection...CSF leak????

Also it depends if the first surgery was the full PDF...there r some less invasive surgeries that may need to be done to go a bit further to help with some symptoms.

Keep in mind this is not a cure, but a way to slow progression...and if nerve damage was done, there is no way to relieve those symptoms.

Make sure u r using a true chiari specialist.....

My best to ur DD

"selma"
Blank
926258 tn?1249585360
Talk about me and I shall return!  (Or just be having a semi-decent day where I get on the computer!)

I had a decompression done in Albany, NY on 6-30-06, and a revision by Dr. Insinga at TCI on 5-27-09.

Did I mention that Selma was MY roomate at TCI, and she's awesome!?!

Anyways, since my revision in May, I felt great for about a month or two afterwards and feel as if I have been going downhill ever since then.  My biggest concern is that I've been having passing out spells quite often.  My most recent spell was I passed out doing wishes, and the boiling hot water over flowed the sink, burning my feet.

I'm not attempting to scare you or anything, but each case is different...I just hope your daughter does much better than I have been doing!
Blank
Post a Comment
To
Recent Activity
Avatar universal
Blank
Huskergirl1 joined this community
Welcome them!
18 hrs ago
620923 tn?1452919248
Blank
selmaS commented on selmaS's status
Sep 17
Avatar universal
Blank
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
1306714 tn?1327260680
Blank
muskegon, MI
7530528 tn?1428275172
Blank
TX
Avatar universal
Blank
979826 tn?1389039958
Blank
germantown, MD
Avatar universal
Blank
Chiari Malformation Community Resources