Chiari Malformation Community
Anyone have Chiari issues but CSF flow study shows normal?
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Anyone have Chiari issues but CSF flow study shows normal?

So, I went to the Neurologist and he scheduled a CSF flow study.  It came back normal and he doesn't think Chiari is the cause of my problems.  He said he could not be 100% but thinks that is the case.  We tried an occipital nerve block but it did nothing.  He thinks it is a musculo-skeletal issue.  I've been going to physical therapy now for a month but no luck so far there.   Has anyone had Chiari problems but the csf flow study/cine mri show up normal?  My tonsils are at 9mm.

I have headaches in the back that get worse if I bend over or strain, my legs are stiff and wobbly, my balance is off, I lose my train of thought constantly, I'm pretty much constantly in a fog (I feel like I'm high all the time), my vision is blurry, my eyes and eyelids twitch, I feel like I have lump in my throat, pressure behind my eyes.

Maybe I'm wrong but it just seems like everything points to Chiari.  Any help would be greatly appreciated.
Related Discussions
3 Comments Post a Comment
Blank
1457748_tn?1317578765
HI,
I also had a CINE MRI to check csf flow. Mine came back normal according to my NS. The report states that I have no flow in the 4th ventricle, but according to my NS if it was flowing to slow or too fast it could be why it didn't show on the CINE....Every symptom you described I also experience. I believe without a shadow of doubt that my symptoms are Chiari related. I have a 7-8 mm herniation according to brain MRI and 6-7 mm according to C-spine, but it's not the length of the tonsils that matter as much as rather they are compressing the brain stem or restricting CSF. I actually think I may have IH or (Intracranial hypertension) but I haven't had this tested. The reason I believe this is because the pressure builds up so bad in my head it feels like it's going to explode. I can feel the fluid come out of my left ear and my nose when this happens. I started taking Diamox which decreases csf and it has helped to alleviate a lot of the pressure headaches.

Don't give up just keep pushing and eventually you will find the right Dr. to do the right test.

Have you had a full spine MRI to check for any Syrinx or possible Tethered cord?.
Blank
Avatar_f_tn
Might be worth reading the report yourself, if you haven't already.  Some doctors will also say a 9mm herniation is normal and therefore not even mention it.
Blank
620923_tn?1405964489


  Hi...were u ever in a MVA?...Dx with Ehlers-Danlos?

Checked for a retroflexed odontoid?...ask ur dr about these.....

    "selma"
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
Avatar_n_tn
Blank
lilbit1166 commented on Pain Control via Mind...
7 hrs ago
Avatar_f_tn
Blank
22amber44 joined this community
Welcome them!
17 hrs ago
620923_tn?1405964489
Blank
selmaS commented on photo
Jul 21
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH