Hi...This was the hardest thing for me to accept, but I actually stopped riding Roller Coasters b4 I got my DX bcuz I had issues after getting off the ride, in fact I got worse with many of the rides....I have not nor will I try post op....I do not want to run the risk of needing more surgery as I do have EDS and the cerviocranial instability and am trying to post pone that surgery as long as I can.
I am a chicken to go back, I close my eye and remember the ride fondly tho....I really like the shows on different coasters and they film from on the ride, it gives a sensation of being on, it is not the real deal, but as close as I will get at this point....lol...
I was specifically told pre op and post op NO rollercoasters. I have same as selma, eds, instability, and disc degeneration, I can't even ride in car without gettin headache and nauseous. The hardesr part is if we go to park, I will have to watch my boys ride coasters. I miss it. It was one of my fav rushes. I don't think pots will let me ride either, prob have a heart attack my heart races so fast already. Good luck to you........Dana
That is the one thing I hated to give up was the thrill of them. Me and my wife just to go wherever they built the new one that year and ride it for our anniversary. I had to stop a few years ago because it made me very dizzy and I couldn't walk. But I was told by the DOC that it was diffentally be a no no after surgery. So right before surgery I rode the Wild Eagle at Dollywood, with my youngest daughter. It took me a few minutes to get off of it but it is something I want forget. So I watch the wife when she does. She has enough fun for the both of us.
You are the only one who can decide whether to risk it or not. But by receiving info from others with CM and its related disorders, you will be able to make the best decicion for yourself.
Before i was Dx, I went on a roller coaster, then shortly afterwards, I found it difficult and painful to lift my legs just to walk. Did I stop going on the rides.....no I didn't. I almost enjoyed the day, but the pain spoilt it really. It made sense after my Dx as to why i felt so bad.
Well anyway, a couple of weeks ago I found myself at a theme park with my family. Knowing about my condition and the things i 'shouldn't' do...........what did i do? I went on them all!!! I had an amazing day and no bad after effects yet. I think my trick is to prepare myself for the rapid changes of direction etc, meaning eyes open to see where you're going. I do this in the car too. Always preparing my body for the next event or danger etc.
I am not telling you to do it, but not saying not to either. I want to enjoy my life when i can. Headaches have stopped me doing so much in my life, that now when i get a good day, i really want to enjoy it and make the most of it.
Good luck with your decision making, but most of all, enjoy the decision whichever way you go.
Actually this is to everyone interested...so we go to Six Flags Great Adventure and Alexa being 16 years old, proceeded to ride EVERY coaster from 10:30 am and was still going strong at 6 pm (I was exhausted by 2 pm). As I watched her for every possible reason to shut her down, she was running through the park with her friends to the next ride. Was she tired when we got home? You bet! Did she ask for a Motrin? Nope. The next morning she was up at 7:30 and played a tennis match. I am so thankful :)
I haven't tried roller coasters since my decompression in December, but before that I rode roller coasters all the time! I would be exhausted the next day and have a massive headache, but that was a price I was willing to pay. I always did not like roller coasters with loops or corkscrews because of how much they jostled my head. The hardest part for me with amusement parks is that I get over heated being in the sun all day and with my POTS it makes me feel really sick. I don't think roller coasters is something I am willing to give up :)
I did not get my surgery yet, but my NS and Neuro said to STAY away... I LOVE all of the thrill rides... but the way I have been feeling the past 6 months or so I wouldn't even dare attempt it with permission..
I am so happy ur DD was able to be a teen and enjoy her day at the park and with no ill effects...that is wonderful...I know I loved all of that at that age...even when my DD was small I went...I was not DX'd but I had it and I know certain rides affected me and I could only go on once and that was it....but I went...if I knew my DX, at that age I may have tried to go back on too....but I am older, and I know I am still having issue and surgery to face so I will not ....lol...
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