Chiari Malformation Community
At a lost
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At a lost

I've recently been seen by Mr Snow in the ENT regarding my menieries disease it as been playing up now for the pass two years now ad various tests done and a CT scan Dr ad seen something on my scan and refered me to c another Dr at Aintree hospital, he looked at my scan and said it wasn't wat Mr Snow thought, but did say that I ad a widened magnum foramen and was sent to c at .Dr at Walton with balance problems, spasms, dizzy, neck and back pains.he then ordered for me to ave a MRI scan done,  I will see the Dr in two weeks time at Walton, but I've been to c my own G.P regarding the outcome of my MRI and she said it was fine but it was showing  in my neck arthritis. But I continue with these deliberating symptoms. Please can anyone help x
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620923_tn?1416285879

  Hi and welcome to the Chiari forum.

Many times Chiari is misDX'd as other things or they dismiss it as an incidental finding and focus on other possible conditions....

Since you are in the UK, you will want to look for a true Chiari specialist from the Ann Conroy Trust list,..,use the list to research Drs  and see if you can get a referral to one.

Many Drs do not recognize chiari as a condition that can cause so much more then they do accept as symptoms....so it is hard for those with it to get a Dr to listen to us.

Know you are not alone....

I will bump up the list for you.
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999891_tn?1407279676
Hi and welcome :)

When I first had problems it was Vertigo, that is why I went to see my GP. My GP thought it was an inner ear problem but when it did not get better he sent me to a ENT. The ENT did not do any investigations at first but thought I had Ménière's disease. He put me on Serc. Nothing changed over a year and a half I got steadily worse. Eventually I had an MRI scan and it reveled a diagnoses of Chiari I later learned that quiet a few people go through this Ménière's disease misdiagnoses.
An MRI is better, it is difficult to diagnose on a CT scan.

I dont know if you have CM but you should get a Neurosurgeon to look at your Scans. CM is rare so you will need a NS with some experience of dealing with CM.      
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Thank you very much for your help, will look into it x
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Thank you for your help too x
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I sure know that arthritis is in itself painful. There have been many of my family members who have suffered through that pain. I can imagine waiting for another two weeks is making the pain you feel even worse. For that, I will pray for you for something I find exhausting-patience and peace. I hope these weeks fly by for you. Please post back any answers you may get.
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Just to ad to my post, I received a copy letter of my appointment with the neurologist stating that I abnormally brisk reflexes, my planters were still going down but I had bilateral ankle clonus.  Can anyone help me with these symptoms x A ENT Dr looked at my CT scan to c if I chiari syndrome on my neck and the scan do have a widened foramen magnum but nothing absolutely definitive from that...
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Thank you, yeah the pain some days is really bad, it as even stop me walking far now, it brings tears to my eyes the pain, and the top of my back hurts while walking, my lovely hubby now carries my handbag when it really hurts, I have to stop walking sometimes with it..x
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Thank you, yeah the pain some days is really bad, it as even stop me walking far now, it brings tears to my eyes the pain, and the top of my back hurts while walking, my lovely hubby now carries my handbag when it really hurts, I have to stop walking sometimes with it..x
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Aww sorry blonde moment,

Just to ad to my story, c my memory is very bad too, I've had to give up my job two years ago now because of my symptoms being really bad, and I haven't driven for two years as well. Also while trying to deal with these symptoms, I started last year with breathing problems,and ended up in hospital with Angina and got blue lighted over to broadgreen hospital to have two stents put in, while trying to recover from that my groin was still in a lot of pain went to c a doctor and yes I got rushed back into hospital, with a anerusym in the groin area, the Dr ad nip my main artery so yes back in theatre. So as u can c been quite a busy couple of years,, so I really need to get these spasms and balance sorted out.  Sorry if I've gone on xx
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