Chiari Malformation Community
Bad news today...
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Bad news today...

I had an MRI on Saturday.  Being the nervous, impatient person that I am and having the benefit of working for a company that facilitates the image analysis of DXA/PET/MRI/CT and everything else under the sun, I went and picked up my images and had my own reading done.

I gotta say, it was very nice sitting behind the radiologist as he read my MRI and having him to there to explain exactly what he was seeing..   so that was good, the news however wasn't great.

My ACM is there, but it's only about 5mm, so he, of course, blew it off.  My syrinx however couldn't be dismissed so easily.  4.1 cm from C-5 - C7.  

Now I have to wait for the neurosurgeon to call me and give me the bad news.  I'm assuming at this point he will want another MRI, with contrast, spanning the entire spinal column/brain.

Not sure what happens next.  Very, very scared of surgery.  

Not a good day, but kind of relieved in a weird way that my symptoms are validated.  

Anybody got any syrnix experience they can lay on me?

Joe
3 Comments Post a Comment
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Avatar_m_tn
Hey Joe-I just got about the same news (C4 with Bone Spur Splintering), except for I got a "bonus", I have T2 lesions in white matter and paranasal inflame from the Trauma. Dont worry about any tests, all are basically painless. What are your main symptoms?. Have you tried any Inversion Therapy or Acupuncture?

Scoyboy  
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620923_tn?1405964489

  Joe,

There are many radiologists and even NS's and NL's that will say a 5mm herniation is nothing to be concerned with, that shows they do not understand how chiari affects us.....

U have Chiari and a syrinx, so u most likely have a CSF obstruction....ur Chiari specialist may want a CINE MRI to see where the obstruction is, and how it does or does not pulsate with ur BP.Could ur syrinx be the result of an injury?

Also make sure they check u for related conditions like EDS it is very important.

If u want I will explain how Chiari can affect u even with a 2mm herniation.
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620923_tn?1405964489

  Hi and welcome to the Chiari forum.

The issues u have r different from those that Joe has.....inversion is not always a good idea when one has Chiari...it can make us feel worse.

With bone spurs and disks out of align inversion can be a help.

I pray u have relief from ur pains
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