Aa
A
A
Close
2096202 tn?1333170630
Basilar Invagination
I've been diagnosed with having Ehlers-Danlos, a Retroflexed Odontoid, and a Basilar Invagination. It's the third condition that scares me the most; I wish I'd never googled it. Does anyone have any knowledge or experience about Basilar Invagination?  Thank you.
Cancel
3 Answers
Page 1 of 1
620923 tn?1452919248

  Hi and welcome to the Chiari forum.

I was also told I have a retroflexed odontoid as I understand this as well as ur other issues ....is a EDS issue.

Many also  have cerviocranial instability.

So, u were not dx'd with chiari......?
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
2096202 tn?1333170630
Not sure. I haven't had a Cine MRI or an Upright MRI done yet, but I think that these tests might show something. Because I have EDS and my neck is very bendy, a lot of things keep getting missed on standard tests.
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

  Do u have a Chiari specialist?....Will ur ins allow u to travel to get to one?Do u have limitations to where u can go?
Comment
Cancel
Comment
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Recent Activity
Avatar f tn
Blank
5665 commented on Think LYRICA was culp...
Jul 21
620923 tn?1452919248
Blank
soccero, and selmaS commented on soccero's status
Jul 11
979826 tn?1389039958
Blank
soccero feeling absolutely horrible ;( Comment
Jul 09
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
1306714 tn?1327260680
Blank
linnielou232
muskegon, MI
7530528 tn?1428275172
Blank
AKC_75
TX
Avatar f tn
Blank
KerriC1
979826 tn?1389039958
Blank
soccero
germantown, MD
Avatar f tn
Blank
lasel22
Chiari Malformation Community Resources
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
1306714 tn?1327260680
Blank
linnielou232
muskegon, MI
7530528 tn?1428275172
Blank
AKC_75
TX
Avatar f tn
Blank
KerriC1
979826 tn?1389039958
Blank
soccero
germantown, MD
Avatar f tn
Blank
lasel22