Chiari Malformation Community
Basilar Invagination
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Basilar Invagination

I've been diagnosed with having Ehlers-Danlos, a Retroflexed Odontoid, and a Basilar Invagination. It's the third condition that scares me the most; I wish I'd never googled it. Does anyone have any knowledge or experience about Basilar Invagination?  Thank you.
Related Discussions
3 Comments Post a Comment
Blank
620923_tn?1405964489

  Hi and welcome to the Chiari forum.

I was also told I have a retroflexed odontoid as I understand this as well as ur other issues ....is a EDS issue.

Many also  have cerviocranial instability.

So, u were not dx'd with chiari......?
Blank
2096202_tn?1333170630
Not sure. I haven't had a Cine MRI or an Upright MRI done yet, but I think that these tests might show something. Because I have EDS and my neck is very bendy, a lot of things keep getting missed on standard tests.
Blank
620923_tn?1405964489

  Do u have a Chiari specialist?....Will ur ins allow u to travel to get to one?Do u have limitations to where u can go?
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
1755089_tn?1376057155
Blank
drewlevas uploaded new photos
1 hr ago
620923_tn?1405964489
Blank
selmaS commented on TAKE ME AWAY...
Sep 22
10588019_tn?1411320063
Blank
kkluv commented on TAKE ME AWAY...
Sep 22
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
Avatar_m_tn
Blank
Ball123
1667208_tn?1333111449
Blank
zygy2
NH
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
Avatar_m_tn
Blank
Ball123
1667208_tn?1333111449
Blank
zygy2
NH