Hi and welcome, so glad a you found this great group!!! I know you might be scared rite now with all that they have told you, but Selma is rite there are lots of doctors out there, just be sure you go to a really good one!!! Like Selma suggested there are those 2 great places in Long Island NY, I am having to go thru a second brain surgery because my first Doctor didn't. Understand all related conditions, with Chiari and Siringo...now I found my new Doctor there In NY and he was the only one that understood my condition, I went thru 6 neurologist and Neurosurgents, and no one not even the first NS who did my first brain surgery was able to tell me why I was still having headaches, dizziness ,blurry vision and the pain in my neck..he told me. That everything was fine!!! But I was felling sicker and sicker...only 1 doctor at NSPC was my MRI and said to me " I know what is wrong with you and I know how to fix it"
So please do your research and don't be afraid to travel to get the best care!!
Hi and welcome to the Chiari forum,
The best place is any place they specialize in Chiari as they treat both....Syringomyelia is a related condition of Chiari....
There are several in NY,.,...the Chiari Institute and “Chiari Neurosurgical Center at NSPC”,
Take a look at our list of Drs and use it to research Drs.....that is more important then just looking at the hospital's name.
I will bump up the thread with a link to the Health Pages...