Blackouts with Chiari malformation

[willowmittens]

My daughter was told she had a chiari Malformation 4 years ago. For 6 months she been having blackouts. started 0nce a month, now twice a day. we are seeing her consultant in a few days, other symptoms are whistling in the ears, lose of feelings in her legs, shaking, breathless and many more.Very frustrated its took this long. had many visit to A&E, put some doctors do not understand and have blamed her age or weight lets hope we get answers this time.

[selmaS]

  Hi and welcome to the Chiari forum.

It can be very frustrating as there r many Drs that have not been updated on the new studies on Chiari and how it affects the patient.

Many Drs feel a Chiari Dx is an incidental finding, so we have to help educate all those we come in contact with.

We do have a list of Drs for those in the UK ur list unlike the USA list it is not compiled of the names of the members drs.....but, it is a place to start like with that list to research Drs that may know a bit more about chiari.

See the health Pages link at the bottom of this page, and then look for the UK list of Drs Ann Conroy Trust.

[Redheadsmommy]

Other than the blackouts I have had all of the other symptoms you have listed for years. I can't believe with a positive diagnosis of Chiari that the doctors don't realize that these are symptoms are related. Hope she gets relief soon.