I was gone for awhile b/c I became so fed up with docs not thinking Chiari was causing my symptoms (they said Pseudotumor Cerebri) that I couldn't even discuss Chiari anymore. After another spinal tap revealed that a year of hefty doses of the meds for my high pressure didn't seem to change it any they agreed I needed to see a neurosurgeon for a shunt. I saw him yesterday and to my surprise he addressed my Chiari right away. He showed me my films from the MRI and immediately said my problem was Chiari and not what the other docs were saying. He is a GOD SEND!!! He was so kind and understanding! I am getting my decompression surgery on June 23rd! He said a shunt (especially an LP shunt) could make my Chiari worse and the probability of infection and having additional surgeries on the shunt was almost 100% especially for someone of a younger age (I'm 29). BUT now that I feel validated --- any advice for someone getting the surgery? What should I expect? Tips on recovery? I'm going to research it but getting firsthand knowledge is always beneficial. Thanks so much in advance for any advice given!
The only thing that I would add is - do whatever it takes to stay calm. Calmness now and going into the hospital for surgery will aid in your recovery. It's not just a mental thing either the body tends to heal faster when we can keep the stress levels down.
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