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Breathing problems during the night

by Lovage, Sep 20, 2009 12:41AM
I would like to know how many Chiari patients have problems with breathing while they are sleeping!!  Do you use oxegen or do they just monitor it?  What is the reasoning for it?  Anyone that can answer this question?  
Member Comments (4)

by rod44, Sep 20, 2009 07:34AM
To: Lovage
HI
It is important that anyone experiencing acute breathing problems should seek prompt medical assistance.

I do not have breathing problems but as someone DX with CM/SM I have researched the whole CM/SM thing to get a better understanding of it
I think that as the brainstem is involved in regulating many of our vital systems including breathing witch is controlled by the central respiratory system located in the brainstem and depends on getting information from the body and sending signals to the body and as Chiari may involve compression of the brainstem area and thus interfere with nerve signals travelling to and from the brain ,this can cause all kinds of breathing problems.
ROD

by selmaS, Sep 20, 2009 09:54AM
To: Lovage
Hi LJ,

Like ROD said  sleeping issues do effect many chiarians...sleep apnea......and many use a CPAP machine to assist them during the night.

I was sent to a sleep clinic, but the dr there kept rxing meds that didn't work and then he wanted me to go to a behavoirist to learn how to get to sleep....so I didn't go back.Since I had surgery I am sleeping better, I still snore, but I am sleeping.

by Lovage, Sep 20, 2009 11:15AM
To: ROD44
I had decompression last year in October and that is when things got worse.  I'm one of the few that have decompression failure.  I did the sleep study about two weeks ago and then they came up with the stop breathing thing and do not know why.  They did not take into concideration that i have Chiari surgery failure.  

by rod44, Sep 20, 2009 02:36PM
To: Lovage
Hi lovage,
I am sorry to hear that your surgery was not successful, this sadly is one of the risks with all surgery and in brain surgery it is much more serous.
I think what you are referring to is sleep Apnea.
Sleep Apnea is a common disorder in which you have one or more pauses in breathing or shallow breaths while you sleep.
Breathing pauses can last from a few seconds to minutes. They often occur 5 to 30 times or more an hour. Typically, normal breathing then starts again, sometimes with a loud snort or choking sound. This is common in CM.
I think not taking in to consideration ANY part of your medical history is irresponsible to say the least.
ROD.
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