Chiari Malformation Community
Busy week...
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Busy week...

So I was diagnosed last week with Syringomyelia (4.1cm C5-C7, 5mm diameter) and this week I have the following appointments:

Neurologist
Neurosurgeon
Cardiologist

I'm going to ask them about the following:

Testing for EDS, POTS, TCS.  

I'm going to request the following:

CINE MRI
Lumbar and Thoracic MRI

I hope to achieve from this appointments:

Understanding of surgical options and timelines.
Options for management of symptoms, specifically pain, fatigue and vision disturbances.
Further diagnostic testing of unknown areas of my spine.

Can anybody think of anything else I should be focused on asking or requesting?

Thanks in advance,

Joe
2 Comments Post a Comment
Blank
Avatar_m_tn
Forgot to mention, I have also been diagnosed with a "borderline Chiari Malformation", at around 5mm herniation.  
Blank
620923_tn?1426651955

  Hi some Drs will not do a CINE once u r found to have a syrinx, some still do it to get a better look at how things are moving, and if ur tonsils pulsate with ur BP.....

But having a syrinx, can indicate an obstructed CSF flow...unless u had an injury in that area?

Ask about overcrowding , or ur odontoid, ask if it is retroflexed......this is usually something that those Dx'd with EDS tend to have, but something to rule out.

Good luck
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
Avatar_f_tn
Blank
Turbinate commented on The Turbinates: What ...
May 20
13941311_tn?1432162553
Blank
GregRoss commented on Attention All Mouth B...
May 20
Avatar_n_tn
Blank
islelandchick commented on Attention All Mouth B...
May 19
Top Neurology Answerers
620923_tn?1426651955
Blank
selmaS
Allentown, PA
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
7530528_tn?1428275172
Blank
AKC_75
TX
12573102_tn?1431705217
Blank
Lottida
Thibodaux, LA
246139_tn?1424375573
Blank
baccalynnwv
OH
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
620923_tn?1426651955
Blank
selmaS
Allentown, PA
9432311_tn?1424647329
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
7530528_tn?1428275172
Blank
AKC_75
TX
12573102_tn?1431705217
Blank
Lottida
Thibodaux, LA
246139_tn?1424375573
Blank
baccalynnwv
OH