Chiari Malformation Community
CHIARI DRS LIST ~~~~Australia
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

CHIARI DRS LIST ~~~~Australia

We are starting a list for our friends down under...we have so many of you visit and become family here we want to help by keeping track of the drs you all find that know and understand chiari.

The Drs on this list should all be researched by you...we did not do any background checks- these are just the names of drs that members here have been to and liked.

Please add your drs name once you had surgery and if you feel he/she was a good chiari dr and you want to share their names.
Related Discussions
14 Comments Post a Comment
Blank
620923_tn?1413427272
Sydney......Dr Marcus Stoodley  

Perth......  Dr Emil Popovic
Blank
620923_tn?1413427272
Sydney.....Dr Rodney Allan
Blank
620923_tn?1413427272
bump
Blank
1069888_tn?1398470712
Anything new to add to this list?  For the Aussie Chiarians, have any of you had any experience with these docs?  Dr Bernard Kwok or Dr Charlie Teo, they both work from Prince of Wales private hospital in Randwick Sydney.

I am trying to help a friend who really has no family.  She is a young woman and this has just suddenly been dropped on her.  Here is what her brain MRI shows:
__________________________________________________________________________
MRI BRAIN:

Clinical History; Ataxia gait and limbs as well as ossicular.

Technique: Axial T1, T2, fine section T2, DWl ADC map coronal T2 were performed prior to IV contrast of Gadolinium, After injection sagittal FLAIR, axial T1, coronal T1 with FAT SAT were performed.

Findings: The lateral, third and the fourth ventricles are norma! in size and a little low in position. The aqueduct is patent.  The posterior fossa is small and the cerebellar tonsils is low extending down to C2 level measuring 2.5cm below the level of the foramen magnum. The subarachnoid space is tight and the spinal cord is kinked over the anterior margin of the odontoid peg moderately. The maximum kinking occurs a the cervical medullary junction. The internal signal of this region is however normal.

The cerebellar tonsils are grossly abnormal in shape into a triangular wedge in the
occipito-atlanto-junction. The occipito-atlantoaxial junction shows normal segmentation with mild dorsal kinking of the odontoid peg developmental^. The basal angle measures 137° being average.

The cerebellar folia pattern is mildly prominent. The petrous bones, acoustic canals. CP angles are clear. No restricted diffusion is seen. No abnormal enhancement is detected. The pituitary fossa, optic chiasma are normal. The white matter is also clear in all sequences.  A polyp is seen in the left maxillary antrum 15mm in diameter.

CONCLUSION: Arnold Chiari malformation is seen with marked abnormal cerebellar tonsils through a tight foreamen magnum. The posterior fossa is also small and the fourth ventricle is a little low in position. The white matter is clear and no syrinx is seen in the upper cervical cord. The cerebellar shows a prominent folia pattern.
__________________________________________________________________________

I hope I haven't crossed our boundaries, as this doesn't have to do with me directly, but she (obviously) sent this info to me so I could try to help her understand.  I am not familiar with some of the items in her MRI, so that's what I'm trying to do.  She also has a difficult time with the keyboard, so I am trying to be the best help to her that I can be.

If you understand more, please fill me in so I can pass it along to her.  I did share with her the fact that I had endoscopic decompression and she said the two NSs she met with had never even heard of it.  I am just concerned - for her sake - that they are actually CHIARI speciaists.  One of the two of them is talking about removing the tonsils.  Does anyone have any experience with this large of tonsils and were they removed?

On my dear young friends behalf, I truly appreciate any wisdom that can be shared.

Blessings, my friend(s)!!!

Lori
Blank
620923_tn?1413427272

  HI Lori...I usually get a hold of one aussie member when we have  newbie from over there for her to help them....I can try to get a hold of her, and she can offer what she has learned about the Drs over there.

Old school was to remove the tonsils....it is no longer done as it is felt that it is best to leave them intact.

  U may want to have ur friend join here if for nething to read what is posted, and I will try to get Hursty48 to reply......but it is best, for ur friend to pop on so she can chat directly with Sue.

   "selma"
Blank
1069888_tn?1398470712
Hello, love!

I gave her the link, along with a lot of info links.  She is pretty much on her own, and that kills me, so... I "adopted" her!  LOL!!!  She's now my Aussie Daughter!  ;)

Have you had a new member by the name of Fabiola?  I don't know if she's come here or not.  I kind of gave her a LOT of info to look at and Drs. to look into, as she was wondering about coming to the US for surgery...???  I will ask her again to join and maybe she can find Hursty48 and link up with her.  If you get ahold of her, give her my email and ask her to send me a message so I'll have her email address, and I'll send her Fab's email.

I hope you're feeling well, love!  Today I feel like I've been hit by a bus... head and body.  UGH!!!

Blessings to you, friend!

Lori
Blank
620923_tn?1413427272


Lori, I sent a PM to Sue (Hursty48) and gave her a link to this thread....she will contact whomever she sees on this thread that needs help.....not sure if she has gotten the message yet, as I have not heard back....but she always does when she can : )

  "selma"
Blank
1994417_tn?1328005669
I am from Melbourne any docs here?
Blank
620923_tn?1413427272

  Just the ones posted above....as I said not too many from down under are active here...so not sure u will get a reply on this thread....

I can try and reach the one member to see if she is able to help out with ur questions....
Blank
620923_tn?1413427272

  BUMPING up for Petals....

The list is not a referral, just a means to start researching Drs other members on here have been to and liked....if u find a Dr not on this list and like how everything goes with him/her, please add them to this link : )
Blank
Avatar_m_tn
hi, i too am after a chiari doctor in melbourne , Have you found anyone?
Blank
620923_tn?1413427272

BUMP
Blank
620923_tn?1413427272

  BUMP
Blank
9589627_tn?1404715817
Can anyone recommend someone in Brisbane?
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
620923_tn?1416285879
Blank
selmaS commented on ChitChatNine's status
Nov 21
Avatar_n_tn
Blank
Alanjb commented on An Insider’s Guide to...
Nov 20
620923_tn?1416285879
Blank
soccero, and selmaS commented on soccero's status
Nov 19
Top Neurology Answerers
620923_tn?1416285879
Blank
selmaS
Allentown, PA
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
7530528_tn?1415842914
Blank
AKC_75
TX
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Chiari Malformation Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1416285879
Blank
selmaS
Allentown, PA
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
Avatar_m_tn
Blank
Ball123
1751596_tn?1406776760
Blank
kristy12
Berlin, Germany
7530528_tn?1415842914
Blank
AKC_75
TX
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN