CHIARI DRS LIST ~~~~UK

[selmaS]

This UK list  was found on the Ann Conroy Trust site :
PLEASE use these names as a starting point for ur research to find ur dr...we did not do a background check on these drs. This is just to help narrow down the field to help you find the dr that is right for you sooner.We encourage feedback and add ons not mentioned on the list.

The Drs on the list practice in different parts of the UK but they all have an interest in the treatment of Syringomyelia and Chiari malformations. They would be happy to accept referrals from general practitioners or other hospital specialists.

Mr Richard Ashpole
Queens Medical Centre
Nottingham

Mr R D E Battersby
Royal Hallamshire Hospital
Sheffield
S10 2JF

Mr Thomas Carroll
Royal Hallamshire Hospital
Sheffield
S10 2JF

Mr Munchi S Choksey
Coventry & Warwickshire University Hospital
Coventry
CV2 2DX

Mr Graham Flint
Queen Elizabeth Hospital
Birmingham
B15 2TH

Mr Carl Hardwidge
Hurstwood Park Neurological Centre
Haywards Heath
RM17 7SP

Mr Sid Marks
The James Cook University Hospital
Middlesborough
TS4 3BW

Mr R Johnston
Southern General Hospital
Glasgow
G51 4TF

Ms Jennifer Brown
Southern General Hospital
Glasgow
G51 4TF

Mr John Gray FRCS
The Royal Victoria Hospital
Grosvenor Road
Belfast
BT12 6BA

Mr David Mowle FRCS
Ninewells Hospital and Medical School
Dundee
DD1 9SY

Mr Dominic Thompson FRCS
Paediatric
Great Ormond Street, London

Mr Rodney Laing MD FRCS (SN)
Cambridge University NHS Trust
Cambridge
CB2 0QQ
Mr Tim Pigott
The Walton Centre for Neurology
and Neurosurgery
Liverpool
L9 7LJ

Mr Bob Redfern
Morriston Hospital
Swansea
SA6 6NL

Professor J Van Dellen
Charing Cross Hospital
London
W6 8RF

Mr Richard Selway
Kings College Hospital
Denmark Hill
London
SE5 9RS

Mr Richard Cowie
Greater Manchester Neurosciences Centre
Salford Royal Hospitals

Mr Richard Ashpole
Queens Medical Centre
Nottingham

Mr Barrie White
Queens Medical Centre
Nottingham

Mr Conor Mallucci
The Walton Centre for Neurology and Neurosurgery
Liverpool
L9 7LJ

Mr Bruce Mathew
Hull Royal Infirmary
Hull

Mr Andrew Broadbelt FRCS
The Walton Centre for Neurology and Neurosurgery
Liverpool
L9 7LF

Mr Nick Haden
Derriford Hospital
Plymouth

David Allcutt FRCS
Consultant Neurosurgeon
Beaumont Hospital
Dubli

[selmaS]

  Hi and welcome to the Chiari forum.

May I ask  how large was your encephalocele? You are one of the first ones I recall saying they have been DX'd with this type and have this along with a syrinx, tethered cord, and hydrocephalous......

The problem is many Drs are not aware of how to treat these conditions OR that they do in fact cause severe symptoms.....

Have you been to a Dr that is a true Chiari specialist?

[shirelle1990]

i have type 3 an the doctors have a said there s nothing they can do for me im always in pain every day s there someone else that can help me????

[selmaS]

  Bumping up

[selmaS]

Thanks for ur endorsement....it is wonderful to have members share their experiences with the drs so that it helps someone else make a decision.....
.......everyone should research teh drs on their own...for the very reasons u gave...they may be competent, but a personally issue may keep u from feeling completely comfortable...so do ur research.

[timelordess]

Can I please vouch for Mr Haden at Derriford hospital Plymouth, and also Mr Ashpole, Queens Medical centre.  Mr Ashpole was my original NS, and although he is a fabulous guy, I couldn't personally feel comfortable with him. Don't get me wrong, nothing wrong with him, has done many of these surgeries and seen a lot of Chiari patients.  When I moved 300 miles away, I was then referred to Mr Haden and it took me all of 20 minutes to decide that he was the NS to treat me. He is a fabulous NS, and dealt with me, and all my extra complications that were not expected, fantastically.
xxx

[selmaS]

Great...please let us know Jackie.

How have u been doing??

[jacmurphy]

Thanks Selma. I see there's one here in Ireland too. I'll check him out to see if he deals with children.

[selmaS]

bump