CSF lab results~ Help!

[Squeakie72]

I have most of the lab results from lumbar puncture.  Still waiting for I-band results to come back from mayo lab.  

Tube 4 used
Cloudy-bloody
WBC - 9
RBC- 11800
Neutrophils- 44
Lymphocytes- 54
Monocytes- 2
Hemorrhagic fluid

Igg serum- 1140
Albumin serum- 4250
Igg csf- 3.5
Albumin igg csf- 18.5
Igg index- .71
Igg synthesis- 2.1

Glucose normal
Protein normal

[selmaS]

  Glad to hear that all areas are being checked....good luck with the sleep study.....

Keep us posted on the findings....

[Squeakie72]

Thanks for the info!  No, I have not been diagnosed with EDS.  I have an appointment with rheumatologist in September. My neurologist referred me to sleep clinic.  The doctor there is also a neurologist.  I have mild sleep apnea.  She said that cpap will help me feel better is not what is causing all my problems.  My cognitive problems have increased to the point that my PCP filled out my FMLA paperwork and disability paperwork.  He said I should not be working right now and hopefully it is something that once diagnosed, can be treated.  I went back to the sleep dr and she put me on nuvigil.  I am going to do the sleep study for narcolepsy.  She said there is no way that my study will come back and if a name can start being put to some things then we might be able to get them all figured out.  Fingers crossed!!  Again Thank you!

[selmaS]

There are some non profits that can fly you to these appointments....check a few of them  out to see if you can get to one with their help.

So many think we have meneire's as many symptoms are similar and a few  have been DX'd with both....but many times it is a mis-DX.

Tarlov cysts, also known as perineurial cysts were first believed to be asymptomatic...but can be symptomatic in a number of patients....

I know I asked b4, but were you DX'd with EDS? This type of cyst is more commonly found in those with EDS.

[Squeakie72]

The only area that has not had an MRI is my thoracic area.  I have a perineural root sleeve cyst starting at S1 that is 18 MM.  I have asked about this before and was told that they are not symptomatic.  My vestibular therapist wants me to see an ENT (possibly Meneire's Disease with Chiari). My GP is sending me to a rheumatologist as well but that appointment is not until September.  I really wish one of the Chiari centers was close.  I just can't afford to travel to one.  

I have had enough of this pain all over.  Continuous headaches, ringing in the ears, dizziness, confusion and you know the drill.  The list is endless.  I feel like a hypochondriac when I go to the doctor.  My GP is great though.  He isn't giving up.  He tries to help to get me to the next doctor.

I am worried about how much longer I can keep treading water at work.  

Hope everything is going well for you!

[selmaS]

  Fantastic news!!!

So glad you are getting more and more ruled out so it is clear what the issues are....do not forget to rule out the related conditions like Syringomyelia, ICP, POTS< EDS....

Good luck and continue to post updates on your journey

[Squeakie72]

Well, good news, I don't have MS.  Dr said I dont have enough markers to make that diagnosis.  So I did a sleep study.  Initial view is that I don't have sleep apnea. Will be 10 days for results.  IMy appointment with the sleep neurologist isn't until the end of May. Still doing the vestibular therapy and added B6 to stash of pills!   I am just thinking this is chiari.  Thanks for responding!  

[selmaS]

  So many Drs discount Chiari as being a condition that will cause symptoms they look for other conditions to offer as a possible DX.....

Thanks I am doing pretty good .....this time of yr can be difficult with the temp changes.....but I will get thru it I usually do...lol....

Lesions can be a result of headaches too...so if you are having more severe headaches that could be why there are more lesions.....

[Squeakie72]

There is only one band in the fluid and none in the serum.  So the report says its negative. Hope all is going well for you!

[selmaS]

  Did they do a LP to check for the bands? I understand that is a more decisive test for MS then just lesions......

[Squeakie72]

I have now completed another MRI of my cervical spine, and an EMG. Both were normal. I am still having some double vision and vision is blurry most of the time. My neurologist says that with the  Chiari it makes it much harder to diagnose MS.  I have 6 lesions, which is an increase from  in 3 since that time. She said she is not saying at this point that I have MS but if I do it is atypical.  A process of elimination and of course the chiari just makes it harder!

[Elisaandbucky]

Hello. Do you keep track of your daily symptoms in a pain journal? Doing so has proven very helpful to me for more than a few appointments. Having an initial visit with a specialist can be quite stressful. When I feel stressed, I forget things - things that are crucial to remember in trying to get an accurate diagnosis. The important thing to keep in mind when you keep this journal is to note the activity you are engaged in just before the onset of a symptom.
And, I am sure you already do so, but always keep all reports, disks of MRIs, and lab results in a file. Good luck with your process.

[selmaS]

  Hi sorry I am not up on these labs so I can not offer insight....do keep us posted on what you find out....

May I ask what symptoms you have been having since you last posted?