Can lose of Peripheral Vision be caused by Chiari

[MistyBrain]

I was diagnosed earlier this year. It appears that Ive been having related symptoms since I was young and just thought this was my lot in life. No really took me seriously. My actual diagnosis was prompted by me having serious concerns about my peripheral vision. I went to an eye doctor who sent me to a neuro opthal. The neuro opthal ordered an MRI. The results were I have Chiari w/10mm decent. I was then referred to a NS who ordered additional MRA and MRIs. He said that my symptoms didn't warrant surgery at this time. So far, there have been no definitive answers as to why I have diminished peripheral vision. They've only been able to determine that there is no tumor or glaucoma. My peripheral vision is getting worse by the week. So much so, that I'm extremely reluctant to drive, and only drive during the day, and only when I absolutely have to drive myself. NS and Neuro Opthal  tell me that it isn't because of the Chair. I'm starting to think that it's just my imagination; but I ve had enough near misses to know this is real. It's a bit depressing.

[KerriC1]

Hi. Just to throw my 2 cents in, I had visual symptoms pre op that worsened post op. More recently so and because of that and the pulsing headaches was put on diamox for high pressure. The blind spots didn't improve terribly sobwas sent for a visual field test which was awful apparently. Then I had another each week for 3 weeks and every one of them showed blind spots and the only diagnosis made was "visual field defects", yet my eyes themselves are healthy. My neurologist told me I prob had papilladema prior to diamox but it didn't present due to the meds. Just something to think about. Good luck to you

[MistyBrain]

Thank you KerriC1
Definitely something to look at. I had several vision field tests. They were all pretty much inconsistent; and I got the same diagnosis visual field defect. I haven't had any Chiari related surgery so far. I go back to the Neuro-opthamalogist next month. Hopefully I get some answers.

I'll post after the visit.

[selmaS]

  Hi there is a Dr Bart Green in Miami, FL....and in NY there is the Chiari Institute....as well as The Chiari Neurosurgical Center at NSP and a few other Drs.....I will list them below...the list is not a referral nor an endorsement for those listed..it is meant to be used as a starting point to research Drs.


NEW YORK

Chiari Institute
Great Neck, New York
[phone]
[phone]
· Dr. Harold Rekate
· Dr. Salvitore Insinga


· Dr. Rohit Verma
University Orthopaedic Associates at Great Neck
611 Northern Boulevard
Suite 200
Great Neck, NY 11021

Tel: [phone]
Fax: [phone]


· Dr. Sol Mora
Caremount Medical Group
600 Westage Business Ctr. Dr.
Fishkill, NY 12524

· Dr. Amit Shelat
200 Old Country Rd Suite 370
, Mineola, NY 11501
Phone:[phone]


Dr. Paolo Bolognese  MD
The Chiari Neurosurgical Center@ NSP
Suite 108
1991 Marcus Ave
Lake Success, NY 11042
Winthrop University Hospital
259 First Street
Mineola,NY 11501
www.chiarinsc.com


Dr. Gregory W. Canute
Dept. of Neurosurgery
725 Irving Ave.
Syracuse, New York
(315) 464-55133

Drs James Greenspan and Fred Scialabba
North Country Neurosurgical
454 Glen St
Glens Falls NY
(518) -793-8160

Dr Chanland Roonprapunt (formerly of The Chiari Institute)
Spine Institute of New York
[phone]

Dr. Arthur Rosiello
New York Brain and Spine
24 Research Way
E. Setauket, NY 11733
631-444-9310

FLORIDA

Dr. Balis
Dr Lewis
3000 Flecther Ave.
Tampa, FL
[phone]

Dr. Bart Green
Miami, FL

Dr. Eric Trumble
Director of Congenital Neurosurgery at the Walt Disney Pavilion at Florida Hospital for Children
He has double-board certification (adult and pediatric neurosurgery)
615 E. Princeton Street, Suite 540
Orlando, Florida 32803
Phone: [phone]
Fax: [phone]
http://www.neurosurgeons4kids.com/

Dr. Jose Valerio
Cleveland Clinic
Weston, Fl.

[MistyBrain]

Thank you so much! This is a wonderful starting point. I truly appreciate your help. God bless.

[selmaS]

  Hi and welcome to the Chiari forum.

It is sad to have to say there are many Drs that are neurologists and even neurosurgeons that do not know or understand the effects of Chiari on any one individual....since Chiari can compress the brain stem and nerves in the spinal cord it can in fact affect any function in the human body....that is my understanding of how it works.....if a nerve is affected ,we will be affected.

I have had my depth perception altered due to Chiari and I no longer drive.

What you need is a true Chiari specialist....one that will test and rule out ALL related conditions.....

Keep in mind they too may not accept all your issues as symptoms of Chiari...BUT they will look at everything and help you get some relief.

Also know you may need to travel to get to the right Dr for you.

And lastly know you are not alone.

[MistyBrain]

selmaS
Thank you so much for the support. It really helps to communicate with people who may not have all the answers; but at least understand. Do you or anyone else happen to know of any Chiari specialist in the NJ/NY area; or even South Florida, since I may relocate to that area.

Thank you so much!

MistyBrain