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Chiari docs

I'm looking for a reliable neurologist in the Kansas City metro area.  Mine tells me there is nothing wrong with me and it's all in my head. He originally was looking for MS and after looking at my films myself and showing them to other Chiari patients, everyone is convinced that's what this is.  I would like to find a Neuro that knows what this is and can read my films and tell me for sure or have another MRI etc
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620923 tn?1452915648
COMMUNITY LEADER
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620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum,.

It is a good thing ur Dr ruled out MS as most Chiari specialists will as well...and then they should rule out Lymes and Lupus...any condition with similar symptoms as it is possible to have both.

Then the Dr should rule out ALL related conditions to Chiari....Syringomyelia, ICP, POTS, sleep apnea, disk issues, Ehlers-Danlos,....

The best thing u can do is if u have a disk with ur MRI on it is send it to a NS not a NL as a NL will DX, but a NS treats...they will be the ones to recognize Chiari...and a true specialist will also rule out the related conditions.

We do have a list of Drs in the Health Pages and in thread form for members to add their Drs names as they feel the wish to share the name with others after they have been to, treated by and still like the Dr....our list is not a referral nor an endorsement of those on it, but a means to help u locate a Dr and using the list  to research the Drs....please note, u may have to travel to get to one.....so ask for the billing office to see if they work with ur medical insurance.

I will bump the list on the thread up for u.

Know u r not alone : )
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