Chiari 1 malformation

[Cathie9696]

Is their such thing as mild chiari malformation.  my husbands MRI just came back and said he has right sided assymetrical chiari malformation 7mm below.  His Dr. does not seem to concern however his symptoms (constand ringing in right ear, weakness in limbs, shorterm memory loss, hands swelling, dizziness etc.) have all come about  withing the last two months but slowing coming togeather over the past two years and progressively getting worse.  Whata do I do.

[selmaS]

  Hi and welcome to the Chiari forum.

Have u looked into state covered medical INS?...I know there is also emergency INS for those that need it.....something to look into, contact ur state representatives office and ask how u may qualify.

I use to have the heavy arm/hand in the AM too....I felt I was dragging it it about....I have not had the issue since my surgery.

Do check into what INS u  may be eligible for.

[Reggie7680]

I got an MRI in 2008 that showed I was born with Arnold Chiari Malformation 1. Since 1994 my doctors simply believed I had a pinched nerve (tingling/numbess in right hand). I was going to have surgery but lost my job in 2009 and haven't had health insurance since. Lately, it seems the numbness has gotten worse. I've woken up sometimes to discover that my hand is numb to the point of being unresponsive. Sometimes it takes a few minutes of "willing" my hand to move in order for my feeling and dexterity to return. Has anyone experienced anything like this?

[selmaS]

  Hi and welcome to the Chiari forum.

Thank u for sharing a Drs name, if u wouldn't mind, please add the name to our Drs list thread....it will make it easier for members to locate.

May I ask does this Dr treat both adults and children?

[Feralchild]

I know this might be late but just in case it's not and you are still looking or to help anyone else, there is a wonderful Neurosurgeon Dr in Springfield Missouri who treats and specializes in Chiari. His name is Dr Sami Khoshyomn

[selmaS]

  Hi and we,come to the Chiari forum.

Meds generally do not help with Chiari HA pain, and more testing should be done to see how ur chiari is affecting ur overall health and what other related conditions may be underlying.

Finding the right Dr is key, u need one well experienced with Chiari...not all are...so u also need to educate urself on Chiari.

[natp1985]

I have chiari type one and have been put on fifty mg of amytryptline a night which is rubbish, I have constant headaces, blurred vision and dizzyness. Has anyone got any suggesions please