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624074 tn?1263877407
Chiari Awareness Ribbon
Just wondering.  Is the Chiari awareness ribbon color a lavener or a royal purple color?  I've seen them both.  The one with the zipper on it that says Chiari is lavender, so I'm assuming that the "official" awareness ribbon for Chiari is lavender.  Just wondering.  I would like to start raising awareness in my area and make some bracelets, but don't know what color charms to buy.  Also, sorry to flood the board with my questions.  I sit at home all day with all of these questions in my head, so I post all day.  Hope y'all don't mind.  Thanks for your help and all of your patcience.
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620923 tn?1452919248
It is the same as Fibromyalgia...purple.

I will locate the chart and let you see it.....I have a friend who has been making the jewelry for chiari and I can PM u a link if u r interested in seeing what her's look like.


"selma"
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624074 tn?1263877407
That would be great!  TYVM
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620923 tn?1452919248
I posted a pic of the necklace Laurie gave me......there is a link to the pic on the right.
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555358 tn?1292535661
Umm, I'm a guy, there's a differance between Lavender and Purple?

:D
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620923 tn?1452919248
uh yeah....one is more pastel of the color while purple is darker...lol...   : )
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I never knew there was a color for chiari.That is very interesting to find out. I looked at your necklace. It is really nice.
Chadry
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906843 tn?1245212494
WOOO HOOO ok folks as you all know purple is the royal color, oh wait, does that mean we are royality or does that mean chairi is a a royal pain in the neck?
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921053 tn?1245184395
I would say that we are "royalty"!!!!  Although this is a rare condition and we would rather not have it, we have been chosen as the few royal ones :)
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992677 tn?1337358095
Do you still have the chart mentioned above? Or know where I can find an accurate one?

CW
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620923 tn?1452919248

  Hey CW how r u and the family? I pray all are well....ur son getting to the bracelets?

Here is the link to the Chart -

http://www.disabled-world.com/disability/awareness/ribbons.php#purple
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5264571 tn?1367805467
It's darker purple. There is a support group who claims to raise money for Chiari yet if you question them they send you suit letters from their lawyer- any non profit you should be able to ask for their funding records and they oblige ASAP. This goes for ALL non profits.
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992677 tn?1337358095
Well not really. However, since this cancer surgery I've been stuck home for the most part so I've started doing a few things with the paracording.

Thank You for he link!

CW
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992677 tn?1337358095
Humm... Was thinking of doing one for myself with colors for different issues. HA! Would have to do a necklace! Not enough room on the bracelet.
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620923 tn?1452919248

  LMAO...same here or just several diff bracelets.....

No worries...know I have u and the family always in my prayers <3

Miss u bro.

sis
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992677 tn?1337358095
Will be around a bit more... not sure how much. But at least feel up to using the computer again. Working on social networks and a website for the thing we spoke about now. At least should be checking in more...

Just so nothing else goes haywire! :-)

CW
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620923 tn?1452919248

  CW...wonderful and sending prayers for nothing haywire to happen : )



I want the link when u get it all set up : )
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