Just wondering. Is the Chiari awareness ribbon color a lavener or a royal purple color? I've seen them both. The one with the zipper on it that says Chiari is lavender, so I'm assuming that the "official" awareness ribbon for Chiari is lavender. Just wondering. I would like to start raising awareness in my area and make some bracelets, but don't know what color charms to buy. Also, sorry to flood the board with my questions. I sit at home all day with all of these questions in my head, so I post all day. Hope y'all don't mind. Thanks for your help and all of your patcience.
It's darker purple. There is a support group who claims to raise money for Chiari yet if you question them they send you suit letters from their lawyer- any non profit you should be able to ask for their funding records and they oblige ASAP. This goes for ALL non profits.
Will be around a bit more... not sure how much. But at least feel up to using the computer again. Working on social networks and a website for the thing we spoke about now. At least should be checking in more...
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