Chiari Malformation Community
Chiari Centers
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Chiari Centers

Hello everyone,

I was diagnosed with ACM I and had surgery in 2000.  I am currently having symptoms that are similar to (if not worse than) the symptoms I had prior to surgery.  However, when I've had MRIs, I'm told they're normal.  (I've had a brain, cervical, thoracic, and lumbar MRI; the last 3 were without contrast, and none of them were Cine.)  I'm getting very frustrated, and if I didn't feel so crappy, I'd rather just give up on trying to find help.  

So, does anyone have any experience with any of the Chiari Centers or Institutes?  If so, which one(s), and are they worth the travel?

Thanks!
3 Comments Post a Comment
Blank
620923_tn?1416285879

  Hi,,,,yes, I went to TCI in NY and a few of the members went to Dr Oro's center in CO...and so far all of us were well pleased,

It make a huge diff to go to a well experienced Dr, and it depends which ones u r referring to,

These 2 are very good, and so is Dr Henderson in MD and Dr Rosner in NC.

But as far as centers the 2 I mentioned are very good,


I have said this many times it is worth it to travel to a Dr that is a true Chiari specialist instead of dealing with a NS close to home and having post  op issues,.....

Make sure ur PCP is up on all u r doing so u have someone to follow ur care once u head back home.

Blank
Avatar_f_tn
Thank you for the info!  Now, as long as I can find someplace that will work with my insurance or with me on payment for out-of-network, I think I'll try to travel somewhere.

Thanks again!
Blank
620923_tn?1416285879

  No worries : )
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
Avatar_f_tn
Blank
fessie1080 commented on When Your Cold Is Not...
5 hrs ago
Avatar_f_tn
Blank
Esophageal manometry test Dec. 5, ... Blank
13 hrs ago by lisasbitsnpieces
Avatar_f_tn
Blank
first appontment with Chairi specia...
14 hrs ago by lisasbitsnpieces
Top Neurology Answerers
620923_tn?1416285879
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
246139_tn?1410875443
Blank
baccalynnwv
WV
1667208_tn?1333111449
Blank
zygy2
NH
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
Chiari Malformation Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1416285879
Blank
selmaS
Allentown, PA
Avatar_m_tn
Blank
Ball123
Avatar_f_tn
Blank
Elisaandbucky
Charlotte, NC
246139_tn?1410875443
Blank
baccalynnwv
WV
1667208_tn?1333111449
Blank
zygy2
NH
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI