I was diagnosed with ACM I and had surgery in 2000. I am currently having symptoms that are similar to (if not worse than) the symptoms I had prior to surgery. However, when I've had MRIs, I'm told they're normal. (I've had a brain, cervical, thoracic, and lumbar MRI; the last 3 were without contrast, and none of them were Cine.) I'm getting very frustrated, and if I didn't feel so crappy, I'd rather just give up on trying to find help.
So, does anyone have any experience with any of the Chiari Centers or Institutes? If so, which one(s), and are they worth the travel?
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