Hi. My name is Mackenzie and I am 21 years old. I was diagnosed with an Arnold Chiari Malformation 1 in January and have been experiencing increased symptoms ever since. My symptoms include:
-Sensitivity to light
-Daily headaches and tension
-Neck and Back pain
-loss of feeling in left side
I am fortunate enough to live within a close proximity of Loma Linda University Hospital and get to work with the top neurologists and neurosurgeons. However, my question is, I am getting my decompression surgery done in October by Dr. Golshani at the Loma Linda Dept. of Neurosurgery. He is a relatively young doctor and new to loma linda so I cannot find reviews on him or any information on whether he has done this procedure before except from his assistant who says he has, but I would like a patient account if I can find one.
So, does anyone have any experience with Dr. Golshani as a neurosurgeon, and hopefully for the Chiari Decompression surgery specifically?
I don't know your Dr but I can tell you I ate solid food the night of my surgery. It depends on how your stomach is as some are nauseated. I remember being careful if I coughed or sneezed for quite sometime but was okay:)
I am only just now beginning to eat regular meals, >2 mo. post op. I ate nothing at all in the hospital. I think it's something peculiar to me, as I couldn't eat after I gave birth either.
I've lived on mashed potatoes, cherries, ice cream, & miso soup, for weeks. Oh, & lots of frozen fruit pops. I think you might just have to see how you feel after surgery, and eat what you crave (even if it doesn't seem to make sense).
Best of luck to you!
I ate reg foods the next day. 7 days post op still have trouble swallowing due to sore neck muscles but keep drink near to help. I only felt nauseous a few times but they gave me a patch behind my ear before surgery for it and stuff in iv right aafter, so no sickness. I have never been more happy with my care before, during and after surgery. First surgery sucked. Then I sought out the best specialist in the world and he is the best..... as long as you are confident in your ns, you will do great...hugs Dana :)
Hi and welcome to the Chiari forum.
We r all diff in how we r post op, I had issues with the pain meds and was in ICU a few days on a liquid diet until meds were changed and I was able to keep things down,
Make sure that all related issues r checked out....EDS, disk issues,syrinx, sleep apnea...do u have a CSF obstruction and will u have a dura plasty....things u will want to know.
I am 3 yrs post op and was well pleased, I went with Chiari specialists.
Sexybare had Dr Oro do her 2nd surgery and just got home so she may be a little slow to answer as she is healing:) Dr Oro is my NS as well and he is brilliant. The little sticker behind the ear is great:) I even asked my primary dr for them when I was nauseated at home after....I forgot
I was wondering how both of you are doing ? My wife was also diagnosed with Chiari and is contemplating surgery. The neurosurgeon is Dr. Golshani. Recently my wife symptoms has been increasingly painful and it is really difficult to see her endure so much pain. It is a helpless feeling to see your love one suffer and endure so much. I do hope the both of you are feeling much better as I know the surgery is not a cure. Best of luck to the both of you and hope you can provide some insight regarding your surgeries. Take care and thank you.
There are many of us that have had surgery,....and the 2 members u replied to have not posted in a while., u can send them a PM (private message) this will generate a email so they know someone is attempting to make contact.
Many of us have posted our surgery experience in our profile page journal....click on a name and see if they have one....or ask : )
Appreciate your email response. That was very kind of you to take the time to write back. My name is Darin and I live in Southern California. It is very nice to meet you. I do hope things are a little better for you after your surgery. Thank you again!
I have not posted in a very long time, i had forgotten my password. good news i figured it out! So i am almost 2 years post op and not doing so well. i was wondering if anyone has had the decompression where they leave the tonsils in? i'm having a lot of symptoms again and i'm worried they might be acting up in there i guess you cold say. the burning feeling in my neck and shoulders is getting old! and not a day goes by without a headache. not to mention how awesome it is to be nauseated and dry heaving multiple times a week if not day. and who doesnt love bending over and feeling like your head is going to pop off! sorry to vent like this. i was just curious about the tonsils thing.
thanks in advance for taking the time to read this.
Hi and welcome back !! Sorry that you ate having issues again tho....and I am not sure it is bcuz the tonsils were left in, it could be not enuff space was made and you have another obstruction OR it could be a related condition and not the Chiari.
Did you have Syringomyelia, ICP, POTS, disk issues, sleep apnea, and ehlers-danlos ruled out?
What all was done during your surgery? Do you know if you had a dura patch placed, if so what type?
Did you have a MRI post op?...One since you have had symptoms return?
I had an MRI over a year ago no i havent had any of those ruled out i am going to go back to my doc but they just want to botox in me to manage headaches. well thats the neurologist wanting to do that they keep trying to push meds on me they already gave me metabolic acidosis and had to stop that bologna. im starting to wonder if i should just get an MRI and then go see me NS?
Hi. I am new to the group, and I was going through the postings. It sounds like you are really struggling. The nausea is quite scared because, if you are like me, there is no warning before vomiting. I have done so while driving twice. The only thing that helps at all is chewing ginger candy (Trader Joe's and Whole Foods- cheaper at TJ's). Sometimes I don't even have to bend over to feel like I want to cut off my head! I also sympathize with your difficulty with passwords. But I an glad you remembered the one for this group. I am sending good thoughts and hope you can get some relief.
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