Aa
A
A
Close
Blank
Avatar universal
Chiari I Malformation
Hello I am 18 years old and was diagnosed with a Chiari I Malformation today. I have been doing lots of research on it and just wondered how probable is it that I will have to get surgery? I also just want to chat with people who know what I am going through. This is scary and it's nice to know I am not the only one out there who's been through this. Thank you!
Cancel
4 Answers
4 Answers
Page 1 of 1
4816750 tn?1368808270
Hello and welcome, to this wonderful community.  Far as the surgery it all depends on the progession of the Chiari.  Yes this is a great place to chat, cause they are going through or done been throguh what you have done.  When you are doing your research remember it does look scary and some of it is, just remember we are all here to help in any way we are able.  The biggest thing for me was knowing that someone was there.  I hope this helps.  Selma is a good one for knowledge.
Comment
Cancel
4816750 tn?1368808270
Comment
Comment
Submit Comment
999891 tn?1407279676
Hi and welcome :)

The first thing you need to understand is that CM surgery is not a cure, surgery is recomended to help improve quality of life.and to prevent progression of the CM.
Have you had a full spinal MRI to rule out Syringomyelia and tethered cord.

Syringomyelia is a fluid filled cavity or cyst in the spinal cord, it is often found in ppl with CM and is thought to be caused by an obstruction of the Cerebrospinal fluid (CSF) at the site of the CM. A CINI MRI (Flow Study) is important to check for obstruction.
Comment
Cancel
999891 tn?1407279676
Comment
Comment
Submit Comment
620923 tn?1452919248

  Hi and welcome to the Chiari forum.

Rod44 and frankie_rush did a great job welcoming you....and as rod mentioned surgery is not a cure and not all with Chiari need surgery, but if u went for testing, u must have symptoms that r driving u to find answers.

May I ask what all u r dealing with...

U will want to know if u have a CSF obstruction and overcrowding....if u have a syrinx(syringomyelia) that is a good indication there is an obstruction,.

Testing that needs to be done now, is to help see how ur chiari is affecting u and ur overall health....this helps determine if u need surgery, BUT b4 u discuss surgery or consider it, u will want to see a few diff Drs, compare them and make sure ALL related conditions are ruled out as many can affect how u feel and heal post op.
Comment
Cancel
620923 tn?1452919248
Comment
Comment
Submit Comment
Avatar universal
Thank you! It means a lot to know I can talk to others that have been through this as well!!
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Recent Activity
Avatar n tn
Blank
cracker420 commented on When Your Cold Is Not...
Apr 30
620923 tn?1452919248
Blank
selmaS, and The_Marine_Corp_Brat commented on The_Marine_Corp_Brat's status
Apr 27
Avatar f tn
Blank
Ladytruth01 commented on When Your Cold Is Not...
Apr 24
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
7530528 tn?1428275172
Blank
TX
1306714 tn?1327260680
Blank
muskegon, MI
Avatar universal
Blank
Avatar universal
Blank
Avatar universal
Blank
Oxford, MI
Chiari Malformation Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1443740527
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923 tn?1452919248
Blank
Allentown, PA
7530528 tn?1428275172
Blank
TX
1306714 tn?1327260680
Blank
muskegon, MI
Avatar universal
Blank
Avatar universal
Blank
Avatar universal
Blank
Oxford, MI