Chiari Malformation

[Izzy434]

Hi everyone! I'm 16 and I have Chiari Malformation type one. I just wanted to know if anyone has any advice on the surgery.. and how effect is it? I'm just totally lost! and scared! and would really love some support. let me know.. thanks :)

[selmaS]

Hi and welcome to the Chiari forum.

May I ask was ur DD ever looked at for tethered cord or a syrinx..either can affect her bladder.

I am so glad ur DD has been doing so well aside from this more recent issue.

"selma"

[SuperMommy21503]

Hi Lzzy

My 7yr old daughter had the surgery last year. she  has been doing great! God is so good! However, recently she has been losing control of her bladder something she has never had a problem with since being potty trained. This  is  what brings me back to researching CM. If your Doctor is recommending surgery...do all your research (with your family) on the  surgery and  the medical team involved &PRAY pray PRAY.

be blessed and good luck

Michele

[shanmomof3]

Izzy, you are in my prayers! You'll be fine sweety! (((HUGS))) Shannon

[Shane99]

Hello Izzy. I'm a zipperhead (that's a person that has had brain surgery - because of the scar it leaves kinda looks like a zipper). I had the surgery almost 2 years ago. I'm glad I did and I encourage others to have it.

You'll be fine. The first week or so is pretty rough, and I'm not gonna lie to ya, there is pain involved, but it will help a lot over time.

Good luck

[Izzy434]

name*

[Izzy434]

His namae is Jay :) thankssss you :)