Aa
A
A
Close
Avatar universal
Chiari Malformation
Teenager with Diagnosis  chiari formation type l.  Does anyone have a neurologist in Nevada with a specialty in this? In the information I have read limiting physical activity is mentioned, does anyone have a better definition of just what should be limited? The Doctor specified no contact sport or other straining. I would welcome any comments on activities like gymnastics or bowling or stage dancing which all seem to greatly intensify pain in all body areas and the headaches.
Cancel
3 Answers
Page 1 of 1
620923 tn?1452919248

  Hi and welcome to the Chiari forum.

We do have a list of activities to avoid with Chiari and Syringomyelia in the Health Pages here is a link to the pages, u may find more info including a list of Drs and tips in there as well as that list.-http://www.medhelp.org/health_pages/list?cid=186

U have to listen to ur body as to what u need to avoid as we will all be affected differently as it is possible to have other related conditions, so instead of looking for a NL,. u may want to locate a Chiari specialist that can help with the testing u should have done next to see what else is going on.

Did the Dr that DX'd u do testing for CSF flow? Look for a syrinx? tethered cord? ICP, POTS, Ehlers-Danlos?

Comment
Cancel
620923 tn?1452919248
Comment
Comment
Submit Comment
Avatar universal
Thank you for your comment referring me to the Health Pages! We found lots of answers there. We have a neurosurgeon appointment for a second opinion.  Hopefully, he will do more testing, but he's no specialist in Chiari.  Lots of complications with headaches, profuse vomiting, depression, insomnia, digestive issues and heat intolerance as others have mentioned so there have been tests for many of those issues. It really does make a difference to have a name of what could possibly cause so many things.
Comment
Cancel
Avatar universal
Comment
Comment
Submit Comment
620923 tn?1452919248

  Experience has been, if it is not a Chiari specialist u get brushed off as it could not possibly cause those symptoms u mentioned....but, it may help to go and get thru  to see just what this Dr may  or may not know...many times we get referred to a Diff Dr....told it is anxiety, depression etc...so we have dubbed this The Royal Chiari Run Around.
Glad the Health Pages were helpful to u....keep us posted on how it goes with this Dr....and keep asking questions : )
Comment
Cancel
620923 tn?1452919248
Comment
Comment
Submit Comment
Your Answer
Avatar universal
Answer
Know how to answer? Tap here to leave your answer...
Answer
Submit Answer
A
A
Recent Activity
Avatar f tn
Blank
MG18 uploaded new photos
May 28
Avatar f tn
Blank
zomblvr uploaded new photos
May 22
Avatar f tn
Blank
zomblvr joined this community
Welcome them!
May 22
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
Avatar f tn
Blank
lasel22
1306714 tn?1327260680
Blank
linnielou232
muskegon, MI
7530528 tn?1428275172
Blank
AKC_75
TX
Avatar f tn
Blank
KerriC1
4760166 tn?1398360913
Blank
The_beat_goes_on
TX
Chiari Malformation Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1463449675
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
Avatar f tn
Blank
lasel22
1306714 tn?1327260680
Blank
linnielou232
muskegon, MI
7530528 tn?1428275172
Blank
AKC_75
TX
Avatar f tn
Blank
KerriC1
4760166 tn?1398360913
Blank
The_beat_goes_on
TX