I am wondering if anyone knows of a Chiari expert at Mayo Clinic in Rochester MN? I have been doctoring there and after reading a lot about Chiari and am wondering if maybe that is the cause of my symptoms and not a spinal fluid leak? I'm scheduled to see a neuologist down there in early May and I think I will ask more questions. I know they are planning to redo the MRI. I see on their site that they treat Chiari there.
Hey there, you have a good question. I was asking the same thing when I found out about my Chiari, because I know someone at the Mayo in MN, and thought that would be helpful. The thing is, I never could find a doctor on any of the Chiari Specialist lists who practices there. It is a great place, and they are very capable doctors, but you would do well to check the specialist lists. SelmaS in corroboration with many others has worked to create a list of Chiari specilists around the Us and other parts as well. You can find it on the forum board under "List of Chiari Specialists".
There is also another short list of specialists in the country that I have used to cross-reference the doctors I was looking at, and you can find it at:
I hope that is somewhat helpful. I have been told to look for a specialist who #1 lists Chiari somewhere in his Areas of Interest, #2 has been published on the topic of Chiari, and #3 deals with Chiari on a very frequent basis.
In the end I found a doctor who had trained at teh Chiari Institute of New York, but who practices in my area. He is on the cutting edge of Chiari medicine, and stays up with all the latest research because it is clearly his passion. When I met with him he performed 6 tests and spent a long time with us in consultation explaining everything, even clueing me in on the newest research. He's not in MN, and might be a far drive for you.
Best of luck. Hope you find what you are looking for.
Thanks for your input. I have looked at the list that Selma posted and I'll check out the link you gave me. Thanks too for the one, two three criteria list - I can see where that would be important.
Have a Blessed Easter!!
Hi...not all big named clinics have chiari specialists...so be advised so u r not too disappointed.....I know a few that went to the clinic u mentioned but were not happy with the Drs there....I do not know for sure about the location u mention and if there is one there...so do please let us know : )
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.