Chiari Malformation Community
Chiari Specialist at Mayo Clinic - Rochester MN?
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Chiari Specialist at Mayo Clinic - Rochester MN?

I am wondering if anyone knows of a Chiari expert at Mayo Clinic in Rochester MN? I have been doctoring there and after reading a lot about Chiari and am wondering if maybe that is the cause of my symptoms and not a spinal fluid leak? I'm scheduled to see a neuologist down there in early May and I think I will ask more questions. I know they are planning to redo the MRI. I see on their site that they treat Chiari there.
Related Discussions
3 Comments Post a Comment
Blank
1645944_tn?1305246937
Hey there, you have a good question. I was asking the same thing when I found out about my Chiari, because I know someone at the Mayo in MN, and thought that would be helpful. The thing is, I never could find a doctor on any of the Chiari Specialist lists who practices there. It is a great place, and they are very capable doctors, but you would do well to check the specialist lists. SelmaS in corroboration with many others has worked to create a list of Chiari specilists around the Us and other parts as well. You can find it on the forum board under "List of Chiari Specialists".
There is also another short list of specialists in the country that I have used to cross-reference the doctors I was looking at, and you can find it at:
www.*************.org/c/Arnold_Chiari_Malformation/forum/10747609-list-chiari-specialists/page-3 .

I hope that is somewhat helpful. I have been told to look for a specialist who #1 lists Chiari somewhere in his Areas of Interest, #2 has been published on the topic of Chiari, and #3 deals with Chiari on a very frequent basis.

In the end I found a doctor who had trained at teh Chiari Institute of New York, but who practices in my area. He is on the cutting edge of Chiari medicine, and stays up with all the latest research because it is clearly his passion. When I met with him he performed 6 tests and spent a long time with us in consultation explaining everything, even clueing me in on the newest research. He's not in MN, and might be a far drive for you.
Best of luck. Hope you find what you are looking for.
Blank
1602878_tn?1304339616
Thanks for your input. I have looked at the list that Selma posted and I'll check out the link you gave me. Thanks too for the  one, two three criteria list - I can see where that would be important.
Have a Blessed Easter!!
Blank
620923_tn?1405964489

  Hi...not all big named clinics have chiari specialists...so be advised so u r not too disappointed.....I know a few that went to the clinic u mentioned but were not happy with the Drs there....I do not know for sure about the location u mention and if there is one there...so do please let us know : )

  "selma"
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
Avatar_n_tn
Blank
lilbit1166 commented on Pain Control via Mind...
Jul 23
Avatar_f_tn
Blank
22amber44 joined this community
Welcome them!
Jul 23
620923_tn?1405964489
Blank
selmaS commented on photo
Jul 21
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH